Living With Someone Who Is Mentally Ill: Interview with My Daughter

My daughter has seen it all. From her oceanic blue eyes in her cherub baby face to now, almost 12 years later. She is a remarkable child who has not only witnessed her mother’s hysterics (& panic attacks, drastic weight loss and days of not getting out of bed) but also her own diagnosis of Generalized Anxiety Disorder. My daughter, given the name Sophia Faye at birth, is the epitome of the meaning… “Wise Fairy”. Sophia is an old soul and understands so much for such a young person. Many words can be used to describe her but at the top of the list are definitely compassionate, empathetic, caring and loving. There are days I may miss her little toddling body and cheeky grins but I love watching her blossom into the amazing young lady she is today.

When I decided to do this interview series, I knew I had to interview her. I have not hid much from her. In fact 3 years ago I was so foregone I couldn’t. She learned about suicide at the tender age of 8 and questioned me often about it. She knows I grew to hate her as a newborn. I’ve always explained things to her in an age appropriate manner and often worried about her reactions but she has always listened, digested and never ever judged. I am amazed by her and couldn’t of asked for a better child.

Sophia’s Interview

Lounging in her preteen abode full of textured pillows and dozens of Stitch stuffed animals early in the evening, we both relaxed on her bed. There were many giggles beforehand as she pictured this interview as a video recording and not just a vocal recording. She was a little nervous, as was I, and we both tend to laugh a lot when we are nervous:

Me: How did you feel when I told you I grew to hate you when you were a baby?

Sophia: Fine.

Me: How come you were okay with it?

Sophia: Because I knew you didn’t mean it.

Concerning 3 years ago

Me: What did you feel and think when I left the house 3 years ago to stay with Bubbe & Grandpa (my parents) because Tyler (former foster son) was triggering me?

Sophia: I don’t remember that.

Me: It was only 3 years ago!

Sophia: Didn’t I come with you?

Me: You did.

Sophia: It was when he left?

Me: Yes.

Sophia: Oh, I mean, I was… I didn’t even notice anything was wrong with you. Like, I… I don’t really know. I felt fine because I didn’t know you were triggered.

Me: I left the house because I couldn’t stay there.

Sophia: But wasn’t I there too?

Me: I don’t think you came the first night.

Sophia: Oh. I don’t remember. I’m getting old!

Me (after rolling my eyes at that last statement): How did you feel when I admitted myself into the hospital?

Sophia: Scared.

Me: Did you know why I was there?

Sophia: No, I’m not sure. No.

Me: What did you think when you couldn’t visit me in the hospital and had to stay in the cafeteria with Grandpa?

Sophia: I wasn’t happy about it. I mean, I wanted to see you.

Me: You weren’t allowed to see me because they were worried about what the other people might say to you, what you might see.

Sophia: Oh, okay.

Me: Were you scared when I was released from the hospital?

Sophia: No, because I was happy you were going to leave and come home.

Me: You’ve been protecting me since the hospital stay. How come?

Sophia: Because I don’t want you to go back to the hospital.

GAD, PPD, Depression, & Suicide

Me: Do you blame me for your Generalized Anxiety Disorder and it is okay if you do?

Sophia: No.

Me: Do you blame anyone for it?

Sophia: No. Why would I?

Me: Do you wish you were ‘normal’?

Sophia: Sometimes.

Me: If you didn’t worry about the things you worry about?

Sophia: Sometimes, because sometimes it is good to worry.

Me: Do you fear you’ll have Postpartum Depression and Anxiety because I had it?

Sophia: Sometimes.

Me: Do you worry or fear you’ll have a Depressive Disorder because I have one?

Sophia: I don’t usually think about it. I guess, but that is only when I think about it.

Me: Do you know when I was first diagnosed (with Depression)?

Sophia: You were 14.

Me: And how old are you?

Sophia: I am 11.

Me: So you are close to that age.

Sophia: Yeah.

Me: That’s why I watch you a lot.

Sophia: That’s not creepy.

Me: Not in that sense Sophia. I’m not stalking you… Are you worried I will commit suicide?

Sophia: Very much.

Me: How come?

Sophia: You told me how you took that can cutter thing (a case cutter) and almost cut your hand off (almost slit my wrist).

Me: I was 18 then.

Sophia: So?

Me: That was 20 years ago.

Sophia: You also said that if you go off of medicine you’re probably going to want to commit suicide the next time you have an episode (of Major Depressive Disorder).

Me: Are you worried I will hurt myself?

Sophia: Yeah.

Me: Do you think there will be a next time?

Sophia: Yes, just because of events that can happen in the future.

Me: Like what?

Sophia: Like Bubbe & Grandpa dying or like the kitties dying and stuff.

Me: Do you think because of what I have been through that I am too overprotective with you about Mental Illness?

Sophia: Sometimes. There is no reason you should be.

Me: Do you understand why I am?

Sophia: Yeah. Because you don’t want me to get Depression and stuff.

Stigma & Advocacy

Me: What have I told you about stigma?

Sophia: What does stigma mean again?

Me: Hard to define but how people think the Mentally Ill are a danger to our society, that you should be hush-hush about it because people may not hire you, people may not want to be your friend, people don’t believe it is real.

Sophia: You’ve told me.

Me: And what do you think about that?

Sophia: I mean if that’s what they think, that’s what they think.

Me: Because you know that one of your grandparents thinks that way.

Sophia: Well, yeah, but…

Me: How do you feel knowing that you have Generalized Anxiety Disorder and you have a grandparent that doesn’t believe it exists?

Sophia: Well, that’s what he can think.

Me: Do you understand why I advocate for this?

Sophia: What does that mean, advocate?

Me: Why I share my story. Why I try to teach others.

Sophia: Yes.

Me: Do you see yourself doing that?

Sophia: I don’t know.

Thoughts on Me, Her Mom

Me: Do you think I am a bad mother?

Sophia: No. Not at all. Why would I think you were?

Me: Do you ever wish you had a mother that wasn’t like this?

Sophia: No.

Me: Did you ever think I was a bad mother?

Sophia: No.

Me: How do you characterize your mother?

Sophia: Worried, anxious, fun, caring, loving, sometimes depressed.

Me: Do you always related Mental Illness stuff to your mom?

Sophia: Like different things other than Postpartum?

Me: Well I have had Depression since I was 14. There have been others thrown in there.

Sophia: When I think of Depression I don’t think of you as ‘Oh, she’s depressed’, I think ‘she is still alive and she is strong’.

Me: You see me as strong and a fighter?

Sophia: Yeah.

Me: What traits do you hope you get from me or do you see you already have gotten?

Sophia: I want to get your determination and your strength and sometimes your empathy because a lot of times empathy is good and I want your mental strength.

Me: Any last comments on me, your mother?

Sophia: I love her.

Me: Would you want any other mother besides me?

Sophia: No.

Me: How much do you love me?

Sophia: To infinity and beyond!

I am truly grateful for this kid!

A Letter To My (Toddler) Daughter

While purging our house this weekend in preparation to move next summer I came across the following letter that I wrote on February 8th, 2008.  My daughter was then only about 16 months old and it was in this letter that I realized my struggles with Postpartum Depression and Anxiety were still not over.  She has read this letter, and being the kind loving child she is, apologized for not being soothed by me.  She thought I blamed her.  We had a really long heart-to-heart talk where I told her that she is in no way to blame, that this is what these Illnesses do to my brain at times.  I told her I have always loved her and will always love her… to infinity and beyond.

2/8/08
My Dearest Daughter Sophia,

I should have started this journal sooner… I should have started it right after you were born.  There are so many thoughts and things I need to say to you.  Upmost and of most importance is I love you, I will always love you.  You are the reason I was born.  You are my heart, my biggest accomplishment.

With all this said, I must apologize to you.  I feel like I am failing you as a mother on this particular night.  You have a bad cold today and you are battling cutting a molar and with this you are crying.  I am immediately brought back to when I was succumbed with Postpartum Depression 2 weeks after you were born.  Now as you are nearing 16 months I hate to admit I may still be battling it.  I already feel tremendous amounts of guilt for the 12 days I spent in the Mental Ward when you were only a month old.  Reliving these memories now only makes me feel worse.  I hope you never feel this guilt… this pain.  With this, I get anxiety attacks… shortness of breath, crying, hyperventilation.  I can’t seem to stop them at the moment but just know my sweet girl, Mommy is working on it.

There are fears I have for you whenever an attack hits.  I worry, too much, that I passed this nasty disease on to you.  Just know Depression & Anxiety are real.  Know that I am so sorry if I did pass it to you.

What I am most upset about at the moment is I feel I can’t console you.  Every time I try to rock you, sing to you, hold you… it just doesn’t seem to work.  I just don’t know what I am doing wrong.  I am happy that you are safe in Daddy’s arms but am upset that mine can’t make you better.  Is this because of my anxiety attacks that make me freeze & mentally give up?!

I just want to be normal.  I want to “go with the flow” like your father.  I want to be able to hear you cry & not freeze.  I want to not feel guilty anymore! I want to not feel like I failed you.  I want it resolved today.

You may read this years from now and think it is you who caused this.  Sophia, you are not to blame.  Don’t you dare think that.  Think about it as this, your Mommy has a disease that there is no complete cure from but it will not kill me.  It alters the way I think about things and for this I am getting help.  For this reason I had to go to the hospital for 12 days.  For this reason I feel guilty, worried & like a failure every day.

I only hope you can forgive me for the time I missed… The hugs… The kisses… The songs… I am trying because I want to be there the next time you need to be rocked… The next time you need a lullaby. 

I love you with all my heart & soul and I will until the day I have to depart from this world.  I couldn’t imagine life without you in it anymore.  Whenever you smile, giggle, reach out for me, hug me, give me a kiss, take a step, it makes me realize that the world is a good place and that we will discover it one day at a time, together.

Love Always & Forever,

Mommy

“I Hate You, Mommy!”

​I would have to say it was around age three when Sophia first yelled at me that she hated me.  Being so young, she had not learned just how hurtful the word “hate” could be.  I know a lot of women who have gotten upset, practically in tears, when their young toddler spews forth, “I hate you, Mommy!”  For me the tears didn’t come.  I knew she was just mad that I told her “No” for doing something wrong, or for not buying her something.  Was I wrong not to care?  How come I brushed it off so easily?  How come the bridge of emotional stability did not collapse me into tears at the uttering of “I hate you, Mommy!” like with other mothers?

As an adult, I understand how hurtful the word “hate” can be.  I continuously tell Sophia to never say that word, to always replace it with “dislike” or, in certain circumstances, “extremely dislike”.  “Hate” implies bigotry and prejudice.  We can’t hate something anymore, the word has become a swear word, something evil.  

But, I can say without a doubt, I hated my daughter in her infancy.  Only three weeks after she was born, I had racing thoughts through my head on how I could rid myself of her.  I never wanted to hurt her, I just wanted to remove myself from her presence.  I thought over and over again about running away.  Leaving in a car, train, plane or even a Greyhound bus… something that would take me far away where her cries didn’t echo in my head like a Mandrake plant from Harry Potter and the Chamber Of Secrets (See video here).  I pondered hurting myself so that I might have to be in the hospital for weeks or even months.  I even dreamed of being put into a psychiatric hospital (which would occur).  Anything to get me away from her, because my hatred of her was so strong.

Of course I was ill.  

My daughter is my only child.  She is the child I suffered severely from Postpartum Depression and Anxiety with.  She is the child I grew to hate in her first few weeks and I have told her this.  I have sat her down once she reached age eight and explained why Mommy is, well, a bit different.  She had seen my crying outbursts, my running sprees to the bathroom to dry heave, my clawing at my head, the constant rocking back and forth and my 2nd hospitalization.  I didn’t have to go back to the history of my Postpartum days, but I did.  I wanted her to know everything.  I wanted her to know about how an illness can change the way you think.  And I wanted her to know that now, I love her, as I constantly tell her, “to infinity and beyond!” (Thank you Toy Story!)

But when she uttered those words, “I hate you, Mommy!”, it didn’t faze me in the slightest way.  Why?  It was so easy for me to hate her but so hard to believe that she could actually hate me.  Believing that she had innocence on her side at age three.  The moment she said this, I instantly thought of the 7th Heaven episode (Season 2, Episode 9) where Ruthie tells her mother “I hate you” for the first time.  She’s around 4 or 5.  The mother loses it.  She’s crying her eyes out.  She seriously believes her child hated her… and for what, yelling at her for coloring the walls.  It made me wonder if a child so young could actually understand the affects of saying the word “hate”.   But the episode continues to teach us about the connotation of the word “hate” with the story of a WWII Concentration Camp survivor.

I haven’t  thought much of “I hate you, Mommy” since, until someone I know recently was in this situation and because it was the child she suffered from a Postpartum Illness with, she took it more to heart and was deeply upset that that due to their rough first few years, there was indeed still a separation amongst them.  I thought about this.  With all of Sophia’s knowledge of my Mental Illnesses, when she tells me she “hates” me now, does she really mean it?  I’ve been so honest with her that I am sure there will come a time when she really does hate me.  Who is to say she doesn’t now and, in some ways, she has every reason to.  She knows I have actually hated her.  She knows my presence in the first year of her life was more robotic.  She knows she was ignored while we were fostering a child, my Tyler.  She knows I have missed moments in her life because I was stuck shaming myself for what happened with Tyler.  I have hurt her.  I have hurt her so much.  Am I wrong to assume that eventually she will hate me?

“I hate you, Mommy!” has been said to me so many times in Sophia’s almost ten years of life.  It is usually followed an hour or two later with “I love you, Mommy!”.  At what age does that change for us?  At what age does our innocence fade and we learn how hurtful words really can be?