A Look At LGBTQ+ Adolescents Concerning Self-Harm & Suicide: What Can We As A Community Do?

Image by Jasmin Sessler from Pixabay

I have been asked in my current Introduction to Mental Health Counseling class to take the population I most desire to work with and discuss a particular issue that exists and what we, as the public, can do about it. Because of the suicide of a 12-year-old girl last summer, I have become a huge advocate in youth mental health. The public school system where I live, has started to educate students at the middle school level. Still, instead of calling out the names of these mental illnesses, they group everything under “stress” and “social-emotional well-being.” My first thought is good, they are doing something, but I think as younger adolescents are affected, schools, parents, and the community need to do more.

My Desire To Work With LGBTQ+ Adolescents

As I researched further, I saw a more pertinent need in helping adolescents that identify as LGBTQ+. This need first arose in me after having a friend back in the late 1990s stay ‘in the closet’ because he feared he would be ostracized. When he finally did come out, we told him that he could have told us sooner. We loved him for him, not for his sexual preference.

This yearning increased as my daughter would continue to tell me about friends and classmates in her middle school who were in the sexual and/or gender minority. I felt compassion and empathy for them because they had to keep everything hidden for the same fear my friend had all those years ago. Some of them had to keep it hidden from their parents as well, thinking they would not understand and would disown them. All of this hiding puts stress on LGBTQ+ youth and can, in turn, cause a severe episode of depression. This depression can get worse and lead to self-harm and suicide.

The Facts

I am no professional so I sought out peer-reviewed scholarly articles, meaning they are reliable and trustworthy.

For reference, when I speak of gender minority, I am discussing those that identify as nonbinary, transgender, gender-queer, gender-fluid, and gender nonconforming (Ross-Reed et al., 2019). When I speak of a sexual minority, I am referring to those that are gay, lesbian, or bisexual (Oginni et al., 2019).

One of the first articles I read concerned a study done in the Avon area of England. The group that was studied was 4,274 children from infancy up to the twenties. They were observed at several points throughout their lives including at the ages of 15, 17, 18, and 20. They were looked at for sexual orientations and the relationship to depression, self-esteem, self-harm, and suicidal ideation. It was noted that the individuals who identified as in the sexual minority were more likely to develop depression, self-harm, and suicidal ideation due to the societal stigma that surrounded them (Oginni et al., 2019)

Then, I reviewed a survey performed by the schools in Albuquerque, NM. This was one of the few school locations that looked at gender minority students with regard to their cisgender counterparts. The survey looked at the likelihood of developing violence victimization and self-harm as well as support systems in play for adolescents. The overall consensus was that the gender minority group had a higher percentage of victimization and self-harm than their cisgender peers. They also had significantly less support from family, school, the community, and peers (Ross-Reed et al., 2019).

A similar look at the under-served population of gender minority adolescents noted that these teens had a higher percentage of depression and suicide than their sexual minority peers. It was suggested that there is a clear need for prevention and intervention programs to serve this population especially due to the lack of data that is available. In one study it was noted that 83% of gender minority youth reported feeling depressed, 54% of them contemplated suicide, and 29% of them attempted suicide compared to their cisgender peers (Price-Feeney et al., 2020).

What Can We Do?

So, what can we actually do to help our stigmatized sexual and gender minorities? I am not going to lie, this is a tough question. Support is key. These adolescents need to know there is someone that supports them. They need to know that there is an adult who will advocate for them whether it is a parent, a neighbor, a teacher, or someone in the community. Once licensed, I will be their advocate with the schools, their parents, and the community. Adults that support this population need to come forward and publicly let these students know they are there for them.

One way my town supports our LGBTQ+ youth is that there is a yearly Pride Parade at the beginning of May. This event was created by two eighth-graders for their final middle school project. Every year there has been a large turnout. There is a walk which includes several local groups, including Free Mom Hugs, which I am apart of. There are many tents that have valuable information regarding the LGBTQ+ community as well as supportive local organizations.

We as a whole population need to learn acceptance and have empathy for LGBTQ+ adolescents (Ross-Reed et al., 2019). To just imagine the struggles they are going through breaks my heart.

What suggestions do you as my readers have to help the LGBTQ+ youth feel accepted?

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Important Resources for LGBTQ+ Adolescents

National Suicide Prevention Line: 1-800-273-TALK

Crisis Text Hotline: 741741

The Trevor Project: 1-866-488-7386

LGBT National Hotline: 1-888-843-4564

Trans Lifeline: 1-877-565-8860

References

Oginni, O. A., Robinson, E.J., Jones, A., Rahman Q., & Rimes, K.A. (2019). Mediators of increased self-harm and suicidal ideation in sexual minority youth: a longitudinal study. Psychological Medicine, 49(15), 2524-2532. https://doi-org.ezp.waldenulibrary.org/10.1017/s003329171800346x

Price-Feeney, M., Green, A.E., & Dorison, S. (2020). Understanding the mental health of transgender and nonbinary youth. Journal of Adolescent Health, 66(6), 684-690.

Ross-Reed, D.E., Reno, J., Penaloza, L., Green, D., & Fitzgerald, C. (2019). Family, school, and peer support are associated with rates of violence victimization and self-harm among gender minority and cisgender youth… Head To Toe Conference, April 25, 2019, Albuquerque, New Mexico. Journal of Adolescent Health, 65(6), 776-783. https://doi-org.ezp.waldenulibrary.org/101016/j.jadohealth.2019.07.013

2019, The Year and The Decade

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2019, I can’t say that I am not happy to see you go. I spent most of you in a chronic depressive state. Riding a roller coaster to the point of  my depression becoming cyclical but not quite bipolar. You taught me about self-harm, the urge to see myself in pain, to control something in my life, to feel some sort of emotion. You brought me death of someone close to me, death of my book and its publishing company. You made me lose myself again and again. You turned me into a weak being so unsure if my strength would ever return.

But, 2019, I can’t say all of you was bad. I did two book signings and with that made a good group of friends with other authors. One night together in May and we became so connected that we still chat almost daily. You gave me Princess, the sweetest rescue dog who has brought me so much solace and love. You sent me to California, albeit via a stressful project. I got to see the desert of southern CA including pieces of Joshua Tree National Park. You brought me to some beautiful trails in Vermont. I can definitely say I saw many beautiful things in nature this year.

And your decade, 2019. So much has occurred from 2010 to now. I went through my hardest, deepest episodes of depression. I almost had a son. I loved this boy from the moment I met him and there is still a piece of my heart that is his. You sent me to the short term psych ward in the hospital once again. A place that both scares me and helps me. You introduced me to EMDR therapy, a therapy that saved my life after the grief of having to return my boy to DCF due to my failing mental health. You rewarded me with a new job that gives me the opportunity to travel to places I have never been… Indiana, Tennessee, Georgia and areas of California. You were the decade of my 30s, my decade of learning.

Now I need to turn my attention to 2020, and the decade that will be my 40s. I bid you farewell 2019. My aim will be to try not to look back. I am determined to make your successor the year of strength. I am not going to make excuses anymore and live in your shadow.

I woke up this morning a little giddy. Excited that you will be gone in less than 24 hours. That I can take my life back, take me back from the spiraling depression you put me in. I will return to the gym. I will eat correctly again (heck, I’ll eat again). I will take back what is rightfully mine. I will focus on my mental health, taking inventory of what I need and exploring other therapies, other medications. I will welcome 40 with open arms in February, living it up with friends and family (trying new craft beers, yum!). I will get back to my blog, back to True Crime Tuesdays, back to possibly republishing Rising From the Ashes.

And this decade coming up… there is so much that will happen. My baby girl will graduate middle school in 2020, high school in 2024 and most likely college all in the next ten years. There is a chance I will see her get married toward the end of the decade. There will be many more trips to see places & things I never have, like the redwoods of northern CA and the cheese state of Wisconsin. I will continue to write, focusing on the other books that have be swirling around in my head. Maybe I will become a peer specialist, just a plethora of possibilities.

There is so much that I can make happen, and for the first time in a long while, I am excited!

Adios 2019! Sayonara 2010-2019! Good-bye 30s!

Welcome 2020, my 40s, my time to bring me back!

Mental Health Monday: My Hospital Roommate

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The first time I was hospitalized for mental illness I had two roommates. The first, child-like but middle aged, I would see years later in the same ward. It is the second roommate I had that comes to my mind right now. Unfortunately I do not remember her name as it was over a decade ago (almost 13 years in fact) but she is now making a vivid appearance in my mind.

At the time she was roughly the age I am now, hovering around 40. She had long wavy dark brown hair and glasses. What I used to remember about her was the fact that her sleep movements were monitored. She walked with a cane for reasons unknown to me and because of it every night the nurses would wrap some band-like contraption around her waist. It was for her own safety, physical safety that is. Mental safety would come later. If she fell out of bed, honestly if she moved at all, this alarm would go off.

I remember it waking me up several evenings. The lights would expeditiously fly on with nurses racing through the door. Sure it annoyed me at first, but I was so drugged up I usually fell asleep again rather quickly among the commotion.

But I absorbed a lot more of her than I realized at the time. An abundant amount that lay dormant until now. I am now becoming her.

Like myself, she was one point of a triangle family along with her husband and child as the others. In her case a 15-year-old son, in my case an almost 13-year-old daughter. A triangle, the strongest shape you learn in geometry (and structures if studying architecture). But, what if one of those points fails? What happens to the others?

This roommate’s husband and son visited her almost daily. She had told me that she has been in and out of psychiatric wards for years, since her son was a preschooler. I remember feeling compassion for her… and pity. I couldn’t believe that she constantly put her husband and son through that over and over again.

Oh karma! What goes around comes around. I understand this perfectly.

While I didn’t know it at the time, she was my future. We, her and I, are the same. Although I have only been hospitalized twice for mental illness, I have been battling and fighting this war for years with my husband and daughter in the middle of the combat zone strategically avoiding the rapid open fire.

Like my roommate’s husband and son, I know my husband and daughter love me. They continuously comfort me in their own weird ways. But I wonder… When will they break? When will they say they can’t handle me anymore? When will I become too much of a burden?

For now I think about this woman, taking in what she had and hoping she still has it as she is my equivalent. She is me, I am her. We are the same, yet different. Both struggling internally on an infinite loop while being extremely grateful for those we have and hope to keep.

My New Family… The Barnes & Noble Book Event

I can’t lie, I have fantastic parents. They have grown so much in their views on mental illness. From telling me to keep my mouth shut to being proud about how open and honest I am with my suffering. I have a great husband, whom I chose. He is truly my best friend. He has seen the worst in me and the best and has always stood by me. My daughter is amazing, an old compassionate soul. A kind loving artistic creature and a huge support for me, her mom.

With their support, there has also been some great disappointment with other family members. Since I do not want to upset anyone, I am going to leave them alone and respect them for who they are even if they aren’t very supportive.

They say blood is thicker than water, but I do not believe that. There are plenty of people I know who are adopted or have been adopted and have terrific relationships with their adoptive families. There are many I know that chose friendships over their blood because their blood is just toxic.

I am lucky because I get to have a mix of both. Something a lot of people do not have.

I first ‘adopted’ my oldest and dearest friend ‘J’ as my younger sister. We met when she was 4 and I was 6. For the next few years we had many playdates that included dolls, dollhouses and Lego. Even though there were some years where we were apart, we rekindled our strong friendship and have since been in each other’s weddings and have supported each other with our children. I consider her 3 kids like my own, even though I haven’t met her youngest yet. We try to see each other every year although sometimes it goes longer. And you know what, we pick up conversation as if time hasn’t passed.

Recently, I am choosing to ‘adopt’ more siblings into my tight-knit family.

We all first met online. I know, creepy, right?! You never know who is really behind the online person. We were joined together by who we call our Supreme Leader… CEO and founder of both Stigma Fighters and our publishing company, Eliezer Tristan Publishing. I first met the Supreme Leader through Stigma Fighters as I am a frequent contributor… usually at least twice a year. We met in person at a reading in NYC at the NYU bookstore (wow, that is a lot of letters!) a few years back. What an amazing woman!. I totally love and admire her.

Well, she created this publishing company and was seeking authors who wanted to publish their books. Um, hi, hello, me! I jumped at the opportunity. And hence Rising From the Ashes, the book, was born on October 23, 2018. It is a collection of many of my blog posts here from its birth over 4 years ago until the summer of 2018.

Because of this book, I have met some great people. These people are my family now, including our Supreme Leader.

It all started one day a few months back with a text from the Supreme Leader, “Can you do a book signing in CT on May 17th?” Well, hell yeah I can! She proceeded to tell me that a few other local ETP (Eliezer Tristan Publishing) authors would be there as well. Awesome! I’ve read quite a few of their books and was ecstatic to meet them in person. Well, it got closer to the event, like May 13th closer, when the Supreme Leader didn’t know if she could make it. Usually flying standby, there were no available standby seats.

Panic commenced between the rest of us. We can’t do this without her! It was as if the sky was falling and we were Henny Penny. A group chat was started between us authors to try to raise money for our Supreme Leader and her 2 children, the Little Supremes, to get her here in CT for this event. This chat started out as the “I’m confused” chat because, frankly, we were all very very confused with the situation.

With some begging, a decent donation from myself, and pure luck, we were able to fly the Supreme Leader here. Sadly, one of our fellow authors remained back in Oregon to watch the Little Supremes. This author was my cover designer as well.

Well, in the mass confusion of whether or not our Supreme Leader would make it, Sarcastic Asshole (author of 100) was in a bit of a panic on where he was going to stay the evening of the 16th. Him and the Leader were supposed to be sharing an Airbnb. He was going to back out of coming. Well, I couldn’t have that… no Supreme Leader and no Sarcastic Asshole! No way. I invited Sarcastic Asshole to stay with me.

We had never physically met before. (Insert my mother panicking right now)

So after some mass confusion of which Union Station in CT he was coming into (Yes, we have more than one) and an Uber ride, Sarcastic Asshole landed on my doorstep. Honestly, it was like we were old friends. Conversation was easy with him. We were both very sarcastic people, and some of the oldies of the group of authors. He did think I was going to kill him though as he found my list of what not to do when committing a crime (expect that follow up blog post soon, see the first one here) and quickly took a swig from his bottle of Fireball. But all was well the next morning as we continued our sarcastic banter.

It was time to pick up Young Possum at the train station. After confirming which Union Station we were going to, Sarcastic Asshole and I popped in my car for what would be a fast trip up to Hartford… hahaha. Fast trip on a Friday?! No, CT believes that rush hour starts at 3pm on that day. It took some time but we made it there just in time as Young Possum exited the train station. Now Sarcastic Asshole, of course, started to be a sarcastic asshole with Young Possum but it was all in good fun.

We arrived in West Hartford and was quickly met by Lucky Rabbit’s Foot, her husband, best friend and the cutest toddler you have ever seen. Rabbit was the editor on my book. I admire her so much. What she has gone through and she always seems to have such a cheery positive disposition. Honestly, everyone from this event has gone through so much… so much that some of them shouldn’t physically be here. But that is their stories to tell.

Soon after, Corpse Bride and her mother arrived. I could tell she would fit in perfectly on the sarcasm meter.

But where was our Supreme Leader?!

As the event commencement time was approaching, again, all of us began to panic. What the heck were we going to do without her?! Our anxieties were quelled when she literally popped up in the room.

It’s funny though. If you had attended the event, you would never know that we all had met in person that night. Conversation flowed between us. We read from our books, clapped for each other and had a great panel discussion with the representative from NAMI (National Alliance on Mental Illness).

I was saddened to see the night end. The drive back from West Hartford to my home was a depressed one for this depressive. I missed my new family greatly. None of us knew when another ETP event might happen. The thought of meeting these great people, brought together by mental illness, and not seeing or hearing from them for who knows how long overwhelmed me with sadness.

This sadness quickly dissipated as our private messaging has continued. I have totally ‘adopted’ all of them. They are not only friends. Each one of them… Supreme Leader, Sarcastic Asshole, Young Possum, Corpse Bride & Lucky Rabbit’s Foot, are now close family.

Totally looking forward to our next family event!

I believe it involves breaking things…


Note: I have used nicknames that we have given each other through our messaging and time together. If you would like to know, my given nickname is How To Get Away With Murder because of the above mentioned list and my true crime obsession. They can call themselves out, but I would like to keep their privacy if they do not want to.

And because I love them, I would like to promote their books (which kind of gives away their names):

100

In The Gray Area of Being Suicidal

Nobody

Stigma Fighters Anthology IV 

Untranslatable

Redeeming The Anti-Fairytale

And although my cover designer couldn’t be there, his book:

Cultural Savage: The Intersection of Christianity and Mental Illness

You will not be disappointed!

They Should’ve Warned Me… The PMAD Addition

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I recently read a blog post (written in 2015/revised in 2017) by Jenny Studenroth Gerson on the Huffpost which left me slightly angry and annoyed. Actually, ‘slightly’ is an understatement. I was pissed. In the post, They Should’ve Warned Me, Jenny explains that throughout her pregnancy, she was told to “sleep while you can”, “enjoy your husband now”, and “You’ll never have time to shower.”

Then she proceeds to explain how ‘they should’ve warned her’ about the immense love she would have the second her child was born. About how crying is happy thing. About how you would love your husband so much more. About how eating healthy would create enough milk to nourish your child. About how even being extremely exhausted, waking up in the middle of the night to take care of your child is so rewarding. About how the little cries and screams wouldn’t piss you off but make you feel like a rock star… and so on and so on.

As someone who suffered from two PMADs (Perinatal Mood & Anxiety Disorder), I was angry after reading this. First off, you do not need a ‘warning’ about loving your child. Everything she lists in this post are happy things (and frankly I can’t buy that all of them are true). Who needs a warning that you are going to cry at your child’s birth because you are happy?! Really?! With all this anger, I decided I needed to counteract this post with one of my own that deserves the word ‘warned’ in the title:

They Should’ve Warned Me: The PMAD Addition

12 years ago, I suffered. I suffered first from severe postpartum anxiety that slowly morphed into severe postpartum depression. This is what ‘they’, whoever ‘they’ are, should’ve warned me and, in turn, you about:

  • They should’ve warned me that my anxiety would start right after birth. That I would constantly worry if my daughter was getting enough colostrum. That I would have anxiety attacks in those first few hours in the hospital about why after 2-3 hours she wasn’t brought to me for a feeding.
  • They should’ve warned me that the anxiety would only grow as I had to identify the color of her poop. Is it green? Is it mustard in color? Is it brown?
  • They should’ve warned me that breastfeeding is hard work and sometimes it is not the right answer to feeding your child and that that is okay. Why is she falling asleep on my boob after 5 minutes? Is she eating enough? Oh God, what’s wrong with her?!
  • They should’ve warned me that although crying is normal, keep an eye on it, it could develop into something more than Baby Blues. I cried from day one. Sure it started out being 3-4 times a day but it slowly grew in excess of six times a day.
  • They should’ve warned me that sleep is important and to push for it. Yeah, I get it, you’re not going to sleep much when you have a newborn, but if you have a prior mental health condition (such as myself with depression) then those around you should know the importance sleep plays in your life and allow you to rest for a few hours.
  • They should’ve warned me that my anxiety would worsen that no matter what I tried to eat, it wouldn’t stay down. That vomiting would become my new way of life. That Ensure won’t cure it all and that the smell of chicken cooking would have me running to the bathroom.
  • They should’ve warned me about how my love for my infant would grow into hatred. That with each shriek, I would want to pull out my hair or bang my head against the wall.
  • They should’ve warned me that I would become hysterical enough to make plans to run away, that my husband and daughter would be better off without me. That the whole world would be better off without me.
  • They should’ve warned me that I would scare my family and friends with my hysterics.
  • They should’ve warned me that I would see myself as useless, unworthy and undeserving of love.
  • They should’ve warned me that all this would occur in the first month postpartum and would culminate into admitting myself into short-term psych.
  • They should’ve warned me I would have to be inpatient for 12 days.
  • They should’ve warned me that I would go through many therapy & psychiatry appointments after my stay.
  • They should’ve warned me that I would go through multiple medication changes that first year to find just the right combination.
  • They should’ve warned me that it would be a few months before I loved my child again.

And…

  • They should’ve warned me that it would be a year before I would smile for real.

PMADs deserve warnings. The things Jenny Studenroth Gerson mentions in her article do not. It took me to one year postpartum to feel like myself again. To fully embrace my daughter with infinite love. To know my life is the way it was meant to be. For some women it is longer. Although most women will not be affected by a PMAD, there is a high percentage that are. About 1 in 5 women will experience postpartum depression. That’s just one PMAD. Let’s not forget about postpartum anxiety, postpartum OCD, postpartum PTSD, and postpartum psychosis. These are things to be warned about.

If I could tell Jenny Studenroth Gerson one thing it would be:

Research your definition of ‘warn’. Most women understand and have the immense love for their partner and child at birth. Most women will successfully breastfeed. Most women will cry tears of joy when their baby coos or cries. But you need to realize that over 20% of the postpartum population will not feel that. They will not see these items as warnings (and they didn’t, I took to my Warrior Mom community with this one). Some will find your article cruel, like if they didn’t feel what you did, they weren’t as loving as a mother as you are. And, if they read this while going through a PMAD, it would just make them feel worse. I understand you enjoyed your postpartum stage (and around 80% of mothers will) but please show compassion for the rest of us.

If you are someone you know is suffering from a PMAD (Perinatal Mood and Anxiety Disorder) resources can be found at the sites below:
The Bloom Foundation for Maternal Wellness
Postpartum Support International
2020 Mom
If you know a mother or are a mother considering suicide, please call the National Suicide Prevention Hotline at
1-800-273-8255
or text 741741

You Don’t Have PTSD, You’re Not In The Military: Redefining Our View Of PTSD

My husband told me a story the other day from work.  He forewarned me that I may be a little upset by it.  Uh-oh.  I was a bit worried but once he mentioned the words “Mental Illness” I instantly knew why I would be angered.

“Who said something stupid now?” I asked him expecting some noneducational comment about Mental Illness not being real.

It wasn’t a who this time, but someone’s calendar that offended him.  A calendar?!  Odd, but I had him proceed.  The calendar was created and distributed by the VFW (Veterans of Foreign Wars).  It was in a coworkers cubicle.  Okay, nothing wrong displaying a calendar from the VFW.  I fully support our Veterans.  My father is a Veteran.  How can a calendar from the VFW anger me?!

He went on to explain that the calendar had pointed out that that particular day was PTSD Awareness Day.  I looked at him oddly, “Okay, and?  Not seeing the offensive part…”

“It wasn’t just PTSD Awareness Day, it was Veteran’s PTSD Awareness Day.  I don’t know, it just made me feel like they only think those in the military get PTSD.”

I thought on this a moment.  I actually viewed it as the opposite.  The VFW created a whole separate day dedicated to Post Traumatic Stress Disorder in Veterans.  This is big to me.  Actually acknowledging that the illness exists is huge.  A ginormous step in eradicating the stigma behind PTSD.  I relayed my thoughts to my husband.  He understood but still felt that it ignored the many people who suffered from PTSD and were not in the military.

This I understood.  When someone mentions PTSD, most people will instantly think of someone in the military and mainly a male who was in war.  I did this for the longest time until these four letters were labeled to me.  I have never served (many thank yous to those who have).  The closest I have gotten to the military is wearing my father’s dog tags as a teen because that was in style.  So, how did I, a full time working mom develop PTSD?

Trauma.

Trauma is defined as “a deeply distressing or disturbing experience” on dictionary.com   The definition does not limit it to one group of people.  Trauma can impact anyone at any moment.  One can experience trauma from war, trauma from abuse, trauma from rape, trauma from birth, or like mine, trauma from loss.  I cannot say my trauma was as horrible as those that have seen war, but it still deeply affected me and those around me.  To have an experience that distresses you to complete exhaustion and removes you from reality is serious and can affect anyone.

The ‘T’ of the acronym should be highlighted for all to understand.  While the military makes up a large percentage of those diagnosed with PTSD, there are many people with this diagnosis that have never served.  My trauma came in the quick (extremely quick) time frame of fostering-to-adopt, falling in love with this child, and then losing this child because of my Generalized Anxiety Disorder.  What resulted in these less than 3 months was a depleted being who had lost a ton of weight and frankly, her mind.  After my former foster son went away, I fell into the deepest (and darkest) episode of Major Depressive Disorder of my life thus far.  I grieved.  I grieved for him, I grieved for myself.  For fear that I would hurt myself, because honestly I was worried to be alone with myself, I became inpatient at the local hospital.  After being discharged a whole 5 days later, my PTSD symptoms started.

Everything triggered me.  Driving to my psychiatrist was the worst.  I would pass the Department of Children and Families and start sobbing and having flashbacks.  Then I would pass the hospital and cry more.  It didn’t end there.  Once I arrived at my psychiatrist the tears continued to flow.  Songs made me cry and have more flashbacks.  I couldn’t listen to Adele’s Hello or Ed Sheeren’s Photograph for months.  I would find things at home that were Tyler’s and left behind and once again I was thrown back in time.  Trigger after trigger.  It was an endless game.

But the flashbacks were not my only symptom.  Because of them, I tried to avoid anything that would trigger me.  This led to alternate routes to my psychiatrist which just caused me to be late and feel more shame.  I would try to hide in my bedroom or in my cubicle.  I became isolated, not wanting to be around anyone.  I couldn’t concentrate and had insomnia.

Eventually both my psychiatrist and my therapist at the time gave me a PTSD diagnosis, but a mild one.  It took a new form of therapy (God Bless EMDR), a new therapist and time (over 2 years) and I no longer have this diagnosis.

 

 

 

Living With Someone Who Is Mentally Ill: Interview with My Daughter

My daughter has seen it all. From her oceanic blue eyes in her cherub baby face to now, almost 12 years later. She is a remarkable child who has not only witnessed her mother’s hysterics (& panic attacks, drastic weight loss and days of not getting out of bed) but also her own diagnosis of Generalized Anxiety Disorder. My daughter, given the name Sophia Faye at birth, is the epitome of the meaning… “Wise Fairy”. Sophia is an old soul and understands so much for such a young person. Many words can be used to describe her but at the top of the list are definitely compassionate, empathetic, caring and loving. There are days I may miss her little toddling body and cheeky grins but I love watching her blossom into the amazing young lady she is today.

When I decided to do this interview series, I knew I had to interview her. I have not hid much from her. In fact 3 years ago I was so foregone I couldn’t. She learned about suicide at the tender age of 8 and questioned me often about it. She knows I grew to hate her as a newborn. I’ve always explained things to her in an age appropriate manner and often worried about her reactions but she has always listened, digested and never ever judged. I am amazed by her and couldn’t of asked for a better child.

Sophia’s Interview

Lounging in her preteen abode full of textured pillows and dozens of Stitch stuffed animals early in the evening, we both relaxed on her bed. There were many giggles beforehand as she pictured this interview as a video recording and not just a vocal recording. She was a little nervous, as was I, and we both tend to laugh a lot when we are nervous:

Me: How did you feel when I told you I grew to hate you when you were a baby?

Sophia: Fine.

Me: How come you were okay with it?

Sophia: Because I knew you didn’t mean it.

Concerning 3 years ago

Me: What did you feel and think when I left the house 3 years ago to stay with Bubbe & Grandpa (my parents) because Tyler (former foster son) was triggering me?

Sophia: I don’t remember that.

Me: It was only 3 years ago!

Sophia: Didn’t I come with you?

Me: You did.

Sophia: It was when he left?

Me: Yes.

Sophia: Oh, I mean, I was… I didn’t even notice anything was wrong with you. Like, I… I don’t really know. I felt fine because I didn’t know you were triggered.

Me: I left the house because I couldn’t stay there.

Sophia: But wasn’t I there too?

Me: I don’t think you came the first night.

Sophia: Oh. I don’t remember. I’m getting old!

Me (after rolling my eyes at that last statement): How did you feel when I admitted myself into the hospital?

Sophia: Scared.

Me: Did you know why I was there?

Sophia: No, I’m not sure. No.

Me: What did you think when you couldn’t visit me in the hospital and had to stay in the cafeteria with Grandpa?

Sophia: I wasn’t happy about it. I mean, I wanted to see you.

Me: You weren’t allowed to see me because they were worried about what the other people might say to you, what you might see.

Sophia: Oh, okay.

Me: Were you scared when I was released from the hospital?

Sophia: No, because I was happy you were going to leave and come home.

Me: You’ve been protecting me since the hospital stay. How come?

Sophia: Because I don’t want you to go back to the hospital.

GAD, PPD, Depression, & Suicide

Me: Do you blame me for your Generalized Anxiety Disorder and it is okay if you do?

Sophia: No.

Me: Do you blame anyone for it?

Sophia: No. Why would I?

Me: Do you wish you were ‘normal’?

Sophia: Sometimes.

Me: If you didn’t worry about the things you worry about?

Sophia: Sometimes, because sometimes it is good to worry.

Me: Do you fear you’ll have Postpartum Depression and Anxiety because I had it?

Sophia: Sometimes.

Me: Do you worry or fear you’ll have a Depressive Disorder because I have one?

Sophia: I don’t usually think about it. I guess, but that is only when I think about it.

Me: Do you know when I was first diagnosed (with Depression)?

Sophia: You were 14.

Me: And how old are you?

Sophia: I am 11.

Me: So you are close to that age.

Sophia: Yeah.

Me: That’s why I watch you a lot.

Sophia: That’s not creepy.

Me: Not in that sense Sophia. I’m not stalking you… Are you worried I will commit suicide?

Sophia: Very much.

Me: How come?

Sophia: You told me how you took that can cutter thing (a case cutter) and almost cut your hand off (almost slit my wrist).

Me: I was 18 then.

Sophia: So?

Me: That was 20 years ago.

Sophia: You also said that if you go off of medicine you’re probably going to want to commit suicide the next time you have an episode (of Major Depressive Disorder).

Me: Are you worried I will hurt myself?

Sophia: Yeah.

Me: Do you think there will be a next time?

Sophia: Yes, just because of events that can happen in the future.

Me: Like what?

Sophia: Like Bubbe & Grandpa dying or like the kitties dying and stuff.

Me: Do you think because of what I have been through that I am too overprotective with you about Mental Illness?

Sophia: Sometimes. There is no reason you should be.

Me: Do you understand why I am?

Sophia: Yeah. Because you don’t want me to get Depression and stuff.

Stigma & Advocacy

Me: What have I told you about stigma?

Sophia: What does stigma mean again?

Me: Hard to define but how people think the Mentally Ill are a danger to our society, that you should be hush-hush about it because people may not hire you, people may not want to be your friend, people don’t believe it is real.

Sophia: You’ve told me.

Me: And what do you think about that?

Sophia: I mean if that’s what they think, that’s what they think.

Me: Because you know that one of your grandparents thinks that way.

Sophia: Well, yeah, but…

Me: How do you feel knowing that you have Generalized Anxiety Disorder and you have a grandparent that doesn’t believe it exists?

Sophia: Well, that’s what he can think.

Me: Do you understand why I advocate for this?

Sophia: What does that mean, advocate?

Me: Why I share my story. Why I try to teach others.

Sophia: Yes.

Me: Do you see yourself doing that?

Sophia: I don’t know.

Thoughts on Me, Her Mom

Me: Do you think I am a bad mother?

Sophia: No. Not at all. Why would I think you were?

Me: Do you ever wish you had a mother that wasn’t like this?

Sophia: No.

Me: Did you ever think I was a bad mother?

Sophia: No.

Me: How do you characterize your mother?

Sophia: Worried, anxious, fun, caring, loving, sometimes depressed.

Me: Do you always related Mental Illness stuff to your mom?

Sophia: Like different things other than Postpartum?

Me: Well I have had Depression since I was 14. There have been others thrown in there.

Sophia: When I think of Depression I don’t think of you as ‘Oh, she’s depressed’, I think ‘she is still alive and she is strong’.

Me: You see me as strong and a fighter?

Sophia: Yeah.

Me: What traits do you hope you get from me or do you see you already have gotten?

Sophia: I want to get your determination and your strength and sometimes your empathy because a lot of times empathy is good and I want your mental strength.

Me: Any last comments on me, your mother?

Sophia: I love her.

Me: Would you want any other mother besides me?

Sophia: No.

Me: How much do you love me?

Sophia: To infinity and beyond!

I am truly grateful for this kid!

Living With Someone Who Is Mentally Ill: Interview with My Husband

I was approached by a friend of mine who offered up the suggestion on doing an interview series with family members on what their thoughts and feelings were concerning my Mental Illnesses.  I have to admit, I had been toying with this idea for a long time and at this request, felt it was the time to actually commit to the series.

Since it is May and Mental Health Awareness Month, I knew that I wanted to publish these now.  As much as we (those of us diagnosed) feel and think about when we are deep in the depths of Depression, Anxiety, Bipolar Disorder, Schizophrenia, Borderline Personality Disorder, etc., what do those close to us feel?  Do they feel as hopeless? Do they feel frustrated with us? Are they so angry they are wondering why they are with us?

I interviewed my husband this past weekend (my daughter and parents interviews will follow).  This is a man who has been with me for almost 22 years, since we were teenagers.  He has witnessed 5 out of my 6 episodes of Major Depressive Disorder.  He has been through my hospitalizations, my self-loathing, my hysterical thoughts.  And he stays.  A lot of what I asked him, I knew the answers to (I mean, hey, we’ve been together for over 2 decades!), but he did shock me with a few.

I present below my interview with my loving husband, Jimmy.

The Interview

Picture it, Master Bedroom, a late Saturday afternoon in May in New England.  I greet my husband and thank him for participating.  He nods.  He is not a wordy person which is shocking by some of his answers:

S. Paige:  What were your 1st thoughts and feelings after witnessing my episode of MDD in college where I slammed doors and pushed you out?

Jimmy:  I felt I had done something wrong to make you feel, like, the way you were feeling.

S. Paige:  Were you angry? Were you upset?

Jimmy: Defeated.

S. Paige:  What made you call my parents then?

Jimmy: I don’t remember doing that.  (He did in fact call my parents and filled them in on what was going on with me.  I received a phone call from my therapist that evening and then the campus psychologist the next day.)

Episode 4: Postpartum Depression & Anxiety

S. Paige: Okay, let’s go to something more recent. What did you think and feel when you got the phone call that I was at the hospital after Sophia was born (for severe postpartum depression & anxiety)?

Jimmy: … I don’t know.  I didn’t know what to think or feel.  I didn’t feel.

S. Paige: Were you worried? Were you wondering what the heck was wrong?

Jimmy: No.  I just thought that is what happened (after childbirth).  You had a hormone crash.  You had baby blues.  I didn’t realize you weren’t sleeping well.  I didn’t realize it was a thing.

S. Paige:  Did you realize I was vomiting all the time?

Jimmy:  No, I knew you were taking Ensure.

S. Paige:  Were you and I living in the same house at that time?!  You went to therapy with me.  You went to the psychiatrist with me.  You weren’t concerned at all?

Jimmy:  I don’t recall going to the therapist.

S. Paige:  This is proving to be a really valuable interview (sarcasm)

Jimmy:  I blocked these bad memories out.

S. Paige:  How were those 12 days when I was in short-term psych (I admitted myself exactly 1 month after our daughter was born)?

Jimmy:  Non stop.  I didn’t have time for, like, myself.  I was always visiting you or taking care of Sophia or with your parents or at work.  I had no time for me.

S. Paige:  Did that strain you?

Jimmy:  I’ll never eat at a KFC ever again.

S. Paige: (perplexed) Why? What does KFC have to do with this?

Jimmy:  Because that is where I would eat from the train station on the way to the hospital.  The KFC on North Street.  And I just can’t eat at a KFC ever again because I link the two together.

S. Paige: So it is a trigger?

Jimmy:  Yes.

S. Paige:  How were you able to continue with that schedule?

Jimmy:  Because I knew it would end eventually.  There was light at the end of the tunnel.  I know you didn’t see the light, but I could.

S. Paige:  I feel guilty for that (putting him in this position).  Do you know that?

Jimmy:  It’s what I am here for.  I’m the husband.

Episode 6: My 2nd Hospitalization / A Next Time?

S. Paige:  How did you feel when I went back to the hospital?

Jimmy:  I had gotten used to it.  It’s just like a part of you.  Every decade or so, you’re going to have to spend a couple of weeks in the hospital.  I don’t know.  I’ve just accepted it.

S. Paige:  Are you okay with that?

Jimmy:  Okay-ish.  I would rather you not have to do that.  But, it is part of who you are.  That every time some major event occurs in your life and for whatever reason you can’t adjust to the change it is always a possibility that you could end up in the hospital for a week or two.

S. Paige:  Do you worry about a next time?

Jimmy:  No.

S. Paige:  Do you think there will be a next time?

Jimmy:  Probably.

S. Paige:  Do you ever fear I won’t recover?

Jimmy:  Depends on your definition of recover.  So like hopped up on mega does of anti-psychotics for your life type never recover?

S. Paige:  Yes.

Jimmy:  Yeah, that’s a concern.

S. Paige:  What would you do?

Jimmy:  I don’t know.  I don’t want to think about it.

S. Paige:  Do you fear I will take my own life?

Jimmy:  No.

S. Paige:  How are you so sure?

Jimmy:  I… don’t know.  I’m not so sure, but I am pretty sure.

Stigma

S. Paige:  How did you feel about having your wife in the psych ward?  Did that seem normal to you?  Seem weird?  Did stigma play into it?

Jimmy:  No.  Because… its… its… maybe for the people of the older generation than us.  I might not tell them directly that my wife is a ‘nut job’ and she’s spent time in the psych ward but people our generation and younger are much more accepting of medication and therapy and needing inpatient stuff but I might not be as open to the older generation.

S. Paige:  Taking the older generation into account, how do you feel when your father says…

Jimmy: (cut me off) He’s an idiot.

S. Paige:  I didn’t even get the question out.

Jimmy:  It doesn’t matter.  But he’s my father and its not like I can say anything bad to him because he’s a Catholic father and because you haven’t grown up in a Catholic family you don’t know.

S. Paige:  No, I don’t know.  But you have a wife and daughter with Mental Illness diagnoses’.

Jimmy:  I’m not going to change him so I just accept the fact that he’s and idiot and ignore him as best as I can.

Our Daughter, Sophia

S. Paige:  As a parent, do you worry that she’ll be like me?

Jimmy:  I worry she is going to be like me.

S. Paige:  Why, what’s wrong with you?

Jimmy:  I’m an antisocial, geeky, anxiety riddled ‘nutto’.

S. Paige:  You do not have a disorder.  You have moments of anxiety.  She has one already.  With teenage years and hormones do you worry she’ll follow in my footsteps?

Jimmy:  No, you’re still alive and you’re 38.  She’ll make it through.  It’s part of who you are, it is part of who she is.  I wouldn’t want to change either of you two.

S. Paige:  Do you think because of what I went through, we’re better equipped to deal with Sophia if she does fall victim to depression?  I know we have definitely done better dealing with her anxiety.

Jimmy:  I just hope we’re not biased.

S. Paige: That concerns me.

Jimmy:  I mean you’re super biased towards never going on medication.

(FYI, I am medicated and fine with it)

S. Paige:  It’s not that I’m biased, it’s just…

Jimmy:  … like it’s a sign you’re headed down that slope.

S. Paige:  Yeah.

Jimmy:  And I’m just like yeah, whatever, if it makes the slope less steep than who cares?!

Changing Me

S. Paige:  Did you ever just want to ‘slap’ the anxiety and depression out of me?

Jimmy:  No.

S. Paige:  Do you wish I didn’t have either one?

Jimmy:  Interesting question.  It’s hard to answer.  Because it’s part of you and I love you.  But would not having it make you better or different?

S. Paige:  Do you think we would have had more children if I didn’t have anxiety & depression?

Jimmy: Yes.

S. Paige:  How do you feel overall with this (pointing to self)?

Jimmy:  It’s interesting.  What’s the point of living life if it isn’t interesting?!

S. Paige:  Why do you stay?  Times I’ve said go, leave me, take Sophia.  I’m a disaster, you deserve more.

Jimmy:  I need you.

 

And lastly…

 

S. Paige:  What would you say to a husband/father who was going through this with his wife or child for the first time?

Jimmy:  Persevere, because there is light at the end of the tunnel and it isn’t an oncoming train.  It is really the end of the tunnel.  It will get better.

When You Fear Yourself

There were brief moments, tiny myopic moments, seconds that I could see my reality. In these moments of lucidity, I became scared.  I was frightened at what I was becoming and how fast my body and brain were transforming.  Fortunately (or unfortunately) these moments of clarity were scarce because my body was failing me so rapidly, my cognizance was minimal.

 

I was healthy. Off medication for a few years. Actively working out at least four times a week.  I was confident, loved how I looked and felt, a rare time frame in my life where I wasn’t self-loathing and highly pessimistic. It was a euphoric high that I never imagined I would plummet out of.  I was wrong.  Oh, so wrong.

 

The severe Anxiety hit first. I couldn’t sleep and I tried, I tried so hard.  Listening to my Therapist, I got up, left my bedroom, and went downstairs to watch TV.  I thought watching TV in the dark with the comfort of my cat lying in the crook of my body on the loveseat would do the trick.  I would be able to return to my bed and the act of slumber.

 

But, the sounds came next. My foster son would cough, my daughter would cough and it would echo through the house.  A neighbor’s car alarm would go off.  The heat, even the sound of the damn heat turning on would shatter any hopes of sleep.  Most nights, I gave up around 3am and just cried quietly.

 

It didn’t end there though. The mornings brought me Panic Attacks.  I would be short of breath and my heart would be beating so fast that it felt as if I just finished a marathon in record time.  Nausea would riddle my body and I would run to the bathroom dry-heaving.

 

Then, I started to become delusional, spewing forth ridiculous ideas that my children would be taken away from me (which in the end our foster son was removed from our house), that my in-laws would take me to court to obtain sole custody of my daughter, that I was going to die. These thoughts were constantly in my head and I couldn’t keep them there.  They came out of my mouth easily and I believed every one of them.

 

Finally, Depression and Grief set in, a split second after our foster son was removed. I was experiencing a death not only at losing this little boy who I still think about every day, but at losing myself.  It wouldn’t have been so bad if it wasn’t for those damn moments of sanity.

 

Ugh, they constantly reminded me of what I once was, so healthy and vibrant, and showed me what I had become. I felt defeated. I didn’t understand how all of this happened.  I didn’t want to go on, the fight was so hard.  I feared how much worse I would become; how much worse my family’s lives would be.  I was so scared, so scared that this episode of Major Depressive Disorder and Severe Generalized Anxiety would kill me.  In fleeting moments, I wish it would have.

 

Through all this fear, when I was lucid enough, I knew I needed to get help. I started the hunt for a new Psychiatrist.  I made sure I kept up with Therapy.  I asked for medication even though it was heartbreaking for me to go back on them.  I even fought to be hospitalized again because I knew it would help me.  I wasn’t going to let my fear kill me.  I couldn’t let my daughter lose her mother at such a young age.  I couldn’t let my husband lose his wife.  I couldn’t let my parents lose a child.  I fought for them.

 

It was a long rough journey, so bad, that I believe that the next episode will probably kill me. I’ve taken precautions though.  This time I will never go off my antidepressant.  I will continue to look for the signs, to seek out my fear.  I will be more mindful of my body and listen to it instead of fighting it.  Most importantly, I will remind myself that I have defeated Depression and Anxiety before and that looking at my track record, I am likely to win again.

___________________________________________________________________________

Yesterday was the 3 year anniversary of entering myself into the hospital.  Taking advice from several people (Therapist, family & friends) I do not dwell on how bad I was anymore.  When I think of that time, I acknowledge how far I fell, how bad I became and then, then I think about how far I have come.  I am healthy again, still medicated, still in therapy and still kicking ass.

When You Learn How Important Self-Advocacy Is

In the last twenty years, off and on, with my frenemies, Anxiety & Depression, I have learned quite a bit about living a life with Mental Illness. My first twelve years were in secret, keeping my mouth shut on anything relating to the words melancholy, empty, sad. I was told to hide, told that the stigma would ruin any chance of a career for me, would isolate me and make me feel even more lonely than I already did. I was ashamed that my differences made me plague-worthy. Who wants to be friends with a psycho?!

Eventually, I got fed up… or I should say, extremely deeply depressed. I couldn’t hide it anymore. My Postpartum Depression and Anxiety brought on my first step in becoming free of this stigma… I had to admit my illnesses to someone aside from my family. I had to tell my boss. I had no idea what would happen, if I would be let go for some stupid made up reason to hide the real dismissal of me being crazy. I had no other option though, I was hospitalized and in turn could not do the work I took home to do during my maternity leave.

I then started to tell some friends and upon seeing their genuine compassionate reactions, I realized not everyone believed the stigma behind having a Mental Illness diagnosis. It was from this point, about a decade ago, when I decided to screw the stigma and advocate.

Advocacy is defined as, “the act of pleading for, supporting, or recommending,” by dictonary.com. I dove right in, starting with Mental Illnesses that most were unaware existed, Postpartum Depression and Anxiety. I immersed myself joining up with a non-profit I found on Facebook one day. I bonded with fellow mothers who experienced similar events. Some of them proudly declared their stories while others still felt the need to hide. It was an amazing feeling to not feel alone.

By doing this I began to tell my story to anyone at any given moment. It didn’t matter if they never inquired about my illnesses. I wanted to get my story out there. I wanted to be a voice, a voice that was heard when many others were still so afraid to speak up. This was my main form of Advocacy. I told my stories and frankly couldn’t care less if someone responded negatively which was very rare. I rose up to the challenge of becoming a symbol of someone who could be successful and who lived with Mental Illnesses.

These last few years, I began to learn about Self Advocacy, the need to fight for my own care. This is not always easy to do especially when your own care involves a brain imbalance and what I like to call “thinking imperfections”. In the beginning, I even wondered who would trust me to create my own care plan… after all, that required someone with a healthy brain, not someone who was mentally ill. Now I don’t care. Majority of the time, I am in my right mind and can decide things for myself. But this was not always the case.

Three years ago, things changed. I quickly went from a stable human being to one having a psychotic break. There was no point in creating a Self-Advocacy plan at that time because the change was so rapid I could barely recognize it. One moment I could coherently tell my husband I needed to go to the hospital’s inpatient psychiatric unit, the next, I was in the fetal position scratching my head repeatedly crying for the rapid thoughts to leave me, that it hurt too much. It frightened my husband, my parents and my daughter who was 8 at the time. More importantly, in my lucid moments, it scared the shit out of me.

It was after this last episode with Major Depressive Disorder that I became extremely involved in Self-Advocacy. I needed to be. I knew how my body felt, what my brain was telling me, how the meds were working. When I needed a different type of therapy, I searched for the therapist. I worked together with my psychiatrist at the time in weaning off two of my medications. I made sure my doctors and my therapist were aware of each other. I began to practice Mindfulness and really took notice at how my body felt. There were no secrets anymore, no hiding.

And now, once again, I am advocating for myself. In the last 2 years 9 months, I have been through 4 psychiatrists/APRN’s at the same psychiatric group. They all left for some reason. The first, who saw me through my worst, left to have a baby and never came back. The second I saw once and then he retired. The third who aided me in my weaning and worked with me on medication changes left to become a head for an addiction facility. The last… I saw her once in July, just sent a letter explaining that she returned to work far too early when she had her first child and was now pregnant with her second. She decided to leave the end of the December. I was due to see her in January.

What to do, what to do? As I am waiting for my next assignment, whether it be a psychiatrist or psychiatric APRN, I am researching my other options because well, starting a 5th doctor in 3 years is kind of annoying. With my track record, the 5th is bound to up and leave too. There must be other psychiatric groups out there. Sad thing is, I am only down to seeing them twice a year just for prescriptions. I know for emergency purposes, my primary care physician would write a script for me. Problem is, my Anxiety has been worse these last couple of months and I foresee an additional medication being prescribed. As much as I like my PCP, I need someone who specializes in Psychiatry.

Self-Advocacy is a process that can be very time consuming and mentally and physically draining. When it comes down to it though, it needs to rank high in the self-care process. The only person who is going to care as much about your care and health, is you. What I have realized is that having a Self-Advocacy Care Plan is also a necessity. This can be used when you know you are not mentally stable. It is a list of things for your spouse, parents, or even a special friend to tell the doctors when you can’t. It allows them to advocate for you the way you would want to advocate for yourself.

I am currently putting mine together.