A Look At LGBTQ+ Adolescents Concerning Self-Harm & Suicide: What Can We As A Community Do?

Image by Jasmin Sessler from Pixabay

I have been asked in my current Introduction to Mental Health Counseling class to take the population I most desire to work with and discuss a particular issue that exists and what we, as the public, can do about it. Because of the suicide of a 12-year-old girl last summer, I have become a huge advocate in youth mental health. The public school system where I live, has started to educate students at the middle school level. Still, instead of calling out the names of these mental illnesses, they group everything under “stress” and “social-emotional well-being.” My first thought is good, they are doing something, but I think as younger adolescents are affected, schools, parents, and the community need to do more.

My Desire To Work With LGBTQ+ Adolescents

As I researched further, I saw a more pertinent need in helping adolescents that identify as LGBTQ+. This need first arose in me after having a friend back in the late 1990s stay ‘in the closet’ because he feared he would be ostracized. When he finally did come out, we told him that he could have told us sooner. We loved him for him, not for his sexual preference.

This yearning increased as my daughter would continue to tell me about friends and classmates in her middle school who were in the sexual and/or gender minority. I felt compassion and empathy for them because they had to keep everything hidden for the same fear my friend had all those years ago. Some of them had to keep it hidden from their parents as well, thinking they would not understand and would disown them. All of this hiding puts stress on LGBTQ+ youth and can, in turn, cause a severe episode of depression. This depression can get worse and lead to self-harm and suicide.

The Facts

I am no professional so I sought out peer-reviewed scholarly articles, meaning they are reliable and trustworthy.

For reference, when I speak of gender minority, I am discussing those that identify as nonbinary, transgender, gender-queer, gender-fluid, and gender nonconforming (Ross-Reed et al., 2019). When I speak of a sexual minority, I am referring to those that are gay, lesbian, or bisexual (Oginni et al., 2019).

One of the first articles I read concerned a study done in the Avon area of England. The group that was studied was 4,274 children from infancy up to the twenties. They were observed at several points throughout their lives including at the ages of 15, 17, 18, and 20. They were looked at for sexual orientations and the relationship to depression, self-esteem, self-harm, and suicidal ideation. It was noted that the individuals who identified as in the sexual minority were more likely to develop depression, self-harm, and suicidal ideation due to the societal stigma that surrounded them (Oginni et al., 2019)

Then, I reviewed a survey performed by the schools in Albuquerque, NM. This was one of the few school locations that looked at gender minority students with regard to their cisgender counterparts. The survey looked at the likelihood of developing violence victimization and self-harm as well as support systems in play for adolescents. The overall consensus was that the gender minority group had a higher percentage of victimization and self-harm than their cisgender peers. They also had significantly less support from family, school, the community, and peers (Ross-Reed et al., 2019).

A similar look at the under-served population of gender minority adolescents noted that these teens had a higher percentage of depression and suicide than their sexual minority peers. It was suggested that there is a clear need for prevention and intervention programs to serve this population especially due to the lack of data that is available. In one study it was noted that 83% of gender minority youth reported feeling depressed, 54% of them contemplated suicide, and 29% of them attempted suicide compared to their cisgender peers (Price-Feeney et al., 2020).

What Can We Do?

So, what can we actually do to help our stigmatized sexual and gender minorities? I am not going to lie, this is a tough question. Support is key. These adolescents need to know there is someone that supports them. They need to know that there is an adult who will advocate for them whether it is a parent, a neighbor, a teacher, or someone in the community. Once licensed, I will be their advocate with the schools, their parents, and the community. Adults that support this population need to come forward and publicly let these students know they are there for them.

One way my town supports our LGBTQ+ youth is that there is a yearly Pride Parade at the beginning of May. This event was created by two eighth-graders for their final middle school project. Every year there has been a large turnout. There is a walk which includes several local groups, including Free Mom Hugs, which I am apart of. There are many tents that have valuable information regarding the LGBTQ+ community as well as supportive local organizations.

We as a whole population need to learn acceptance and have empathy for LGBTQ+ adolescents (Ross-Reed et al., 2019). To just imagine the struggles they are going through breaks my heart.

What suggestions do you as my readers have to help the LGBTQ+ youth feel accepted?

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Important Resources for LGBTQ+ Adolescents

National Suicide Prevention Line: 1-800-273-TALK

Crisis Text Hotline: 741741

The Trevor Project: 1-866-488-7386

LGBT National Hotline: 1-888-843-4564

Trans Lifeline: 1-877-565-8860

References

Oginni, O. A., Robinson, E.J., Jones, A., Rahman Q., & Rimes, K.A. (2019). Mediators of increased self-harm and suicidal ideation in sexual minority youth: a longitudinal study. Psychological Medicine, 49(15), 2524-2532. https://doi-org.ezp.waldenulibrary.org/10.1017/s003329171800346x

Price-Feeney, M., Green, A.E., & Dorison, S. (2020). Understanding the mental health of transgender and nonbinary youth. Journal of Adolescent Health, 66(6), 684-690.

Ross-Reed, D.E., Reno, J., Penaloza, L., Green, D., & Fitzgerald, C. (2019). Family, school, and peer support are associated with rates of violence victimization and self-harm among gender minority and cisgender youth… Head To Toe Conference, April 25, 2019, Albuquerque, New Mexico. Journal of Adolescent Health, 65(6), 776-783. https://doi-org.ezp.waldenulibrary.org/101016/j.jadohealth.2019.07.013

Covid-19: A Glimmer of Light

I have been absent, silent, and honestly, very confused by Covid-19. The world of US residents has been turned upside down since mid-March, and we are just now slowly climbing out of our dark holes. Although most of the country is experiencing something similar to what professionals deem “the second wave,” I would like to stay in the bubble of New England where (knock on wood) we have flattened the curve.

How can there be any light among the despair of a global pandemic?! The rollercoaster ride I’ve ridden these past four months had mostly drops instead of inclines. I had no positives in my life except for the health of my friends and family. I had lost my job. I had lost my uncle. I had lost the intimacy of actually spending time with friends face-to-face. I was spiraling fast, and it was not a place I wanted to go again.

At the urging of my therapist and psychiatrist, I made concrete schedules for my former workdays. I had to keep myself busy; otherwise, my brain would wander off to the wonderful (note sarcasm) negative thoughts that have plagued it for decades. The schedule worked fine for a while, but soon it was becoming mundane. I needed more. I needed a light bulb to go on.

And then it did.

I decided there could be a positive outcome from this pandemic for me. I decided to pursue a Masters degree in Clinical Mental Health Counseling. The pandemic had given me the time to reinvent myself, to change careers.

I started at a CACREP accredited university on June 1st and am almost finished with the first quarter. There are two classes per quarter with a one week break at the end of the courses. The first two classes were Foundations of Graduate Study in Counseling and Introduction to Mental Health Counseling. The former was only a 6-week course, which I finished with an ‘S.’ I know, I know, only an ‘S’?! This course had two final grades: ‘S’ for satisfactory and ‘U’ for unsatisfactory. I have to say, though, the ‘S’ really deflates the 99.95% I had in the course.

My Intro to Mental Health Counseling course has proved to be very informative and interesting. While this is an online program, we have a professor and classmates which we interact with on weekly discussions. We have had a brief overview of the history of mental health, self-care, ethics, and multicultural counseling.

I just finished my assignment for this week, which was a reflection on our own biases and differences and how, as a counselor, this could affect us. We had to examine our self. What I have realized upon reading all the material and taking a few self-assessment quizzes, is that although I am a relatively unbiased person, I do have some slight prejudices. I accept this and will learn from this assignment that I will always need to self-assess and, of course, put my clients first.

The final project for this course is to interview a licensed counselor who works with your desired population. I tended to flip-flop on the population I want to work with. First, I wanted to work with women from postpartum to post-menopause. Then, a local girl took her life and that changed everything for me. I understood this girl because I was similar to her in my adolescence with severe depression. At the point I read about her suicide, I decided if I ever went back to school to become a therapist, I would counsel youth and adolescents. I believe helping this population can have staggering effects on their future as adults. Luckily, I know a fabulous child therapist. She is the one my daughter sees and has done wonders with her.

For next week’s assignment I need to advocate for my desired population concerning a topic that affects them. We can present this as a Powerpoint presentation, brochure, flyer, and blog post. What better way to express my advocacy than doing what I have already been doing through my blog!

So, in the next day or two, you will see a new blog post from me. It will not be in my usual format as I am required to use a couple of citations, but it will concern the mental health of our youth. I am sure many of my parental readers will find value in it.

I hope that you, my readers, will join me at the end of the tunnel, where the glimmer of light shines in this currently dismal world. Maybe by reading this post, you can find your own glimmer of light, your own glimmer of hope.

It Takes A Suicide…

July 6th was a rough day for the people in my town. Many somber faces questioning, “Why? Why would she?” They were clueless. All they saw was a happy girl who had a loving family and friends. A preteen about to start the 7th grade in a little over a month.

They didn’t understand. And how could they?!

Unless you have been there or have known someone who has been there, you can’t fathom what would make a person want to take their own life. I understand because I have had that mental pain before, I have suffered from suicidal ideation before. I know what it is like to want to leave the world.

It’s hard hearing when it is a grown adult. Harder when it is a teenager. Definitely the hardest when it is a 12 year old.

My daughter did not know this girl personally. Sophia is a grade ahead and never had any classes or extracurriculars with her. When I showed her a photo, she commented that she had seen her in the halls but that was it. Sophia was saddened to hear about this girl and wondered what we could do.

I, like many others… friends, family, community members, teachers… donated a bit of money to her funeral expenses.

But what more could I do?

How many times I had read articles recently about teens and even preteens in our area taking their life… too many. What could cause this? What could change to prevent this?

I had decided even before this child ended her life to speak to the school about further mental health education at the start of the next school year. Being a huge advocate, I was curious last year when my daughter discussed health class what she was learning. She told me that other than stress and coping techniques, there wasn’t much. We had discussed her anxiety disorder at the beginning of last school year with her guidance counselor. He expressed to us that he would meet with Sophia once a month to check in with her. How many times did he meet with her?

… Zero!

That was when the anger in me started to boil. It was beginning to rapid boil, a pot about to overflow with lava hot water. I was furious. Not necessarily in the case of my daughter because she had a therapist and parents who could recognize her anxiety. But what about the next child? What if that child had no support system at home? What if their parent(s) didn’t believe mental illness is real? What if their guidance counselor was their only support? What then?

That child could have easily taken their own life because no one checked in with them.

We received an email from the school superintendent on behalf of her and the middle school principal regarding the recent suicide of this young girl the day after she took her life. At the end of the email it stated that we should not hesitate to contact either one of them.

I immediately wrote them both an email.

I told them my story about how I was diagnosed at 14 with major depressive disorder but probably had it earlier. I reiterated what Sophia told me about lack of mental health education and wanted to know what the schools were actually doing aside from the one 2-hour grief counseling session. I really didn’t think I would get a response. To my shock, the superintendent wrote me back that same day, a Sunday, saying she would like to discuss this further with me. After much back and forth, we agreed to meet one weekday morning. My daughter came with me.

Prior to the meeting, I was pretty angry with school system. This was solely based off of what happened with Sophia’s guidance counselor and the lack of mental health education in health class. But I went into the meeting with an open mind. I highly doubted the schools did nothing, but I wanted to know what resources, if anything, were available. I was shocked to learn that aside from the 3 guidance counselors (1 for each grade in the middle school) there was a school psychologist and a social worker just for the middle school. All the teachers were learned in mental health first aid. They were using a Tier system model:

  • Tier 1: Mental Health Awareness
  • Tier 2: School guidance counselors, teachers, staff, school psychologist and social worker are brought in to discuss a child’s welfare
  • Tier 3: Police and/or Mobile Crisis Intervention is called

I was glad that was all in play. Very important. Then I asked:

“But what about the kids? What are the kids learning? Do they know where they could go if they are suffering? What resources are available to them?”

Both the superintendent and middle school principal agreed that this was an area they were lacking in. They did teach about stress and feeling “off” in health class but did not come right out and name the conditions (Anxiety, Depression, Bipolar, etc.) which of course feeds the stigma. The principal did express that they were focusing this year on mental health awareness (last year was bullying). They wanted to know if I had any ideas.

Oh boy, did I!

I first told them the story of Sophia and her guidance counselor. Both seemed annoyed that the counselor did not check in with her and were going to make sure that didn’t happen again. They did express to Sophia that she should not feel like she is a burden and to come and see him (the principal) or her guidance counselor whenever she needed.

I said there should be some way to let the kids know that there is a suicide hotline and a crisis text line. They agreed.

I suggested having mental health first aid training for interested parents by supplying a place for it to be held.

I proposed having people who have been diagnosed come to speak to the schools via assembly. I had no shame, I will happily tell my story.

I asked that they let the parents know what resources were available as I, a parent advocating for youth mental health, had no idea. They agreed they would.

And then they hit me with something, a truth, but a big shock: Parents. How do we get more parents involved? After this young girl’s death to the time I met with them (about 2 weeks) I was the only parent to contact the superintendent. I was one of maybe 4 to contact the middle school principal. The dilemma is as simple as what the superintendent stated, “If it is not my kid, it’s not relevant to me.”

The superintendent suggested I sign up for the District Safe School Climate and Wellness Committee. This committee is comprised of parents, teachers, administrators, Board of Education members and even students. They meet about once a month during the school year. I quickly signed up. I am very excited about this and can’t wait for the first meeting.

At this point I was given homework. I am still trying to find answers to my homework. How do I get more parents involved?! How do I put the word out that their kids might be struggling and they might have no idea?! How do I get them to take suicide and mental health seriously when it is not “their kid”?!

And then, when all of the above is answered… how do I get these parents to interact with the schools in finding a cohesive mental health education program that can be used in school and at home for our kids?!

This child that ended her life… it shouldn’t have come to this point to create a year geared to mental health at the middle school. It shouldn’t have come to this point in asking parents to be more involved. This child should not have had to die for the rest of us to wake up. All this said, because of her, I will keep advocating for our children.

Rest in peace, sweet girl. May you not be in pain anymore.

1200px-Lifelinelogo.svg    Crisis Text Line

When a Nobody Becomes A Somebody

A Book Review of Nobody by Sarah Fader and Ari Fader-Van Luyn

Have you ever felt alone? Different? Invisible?

I have most of my life. I knew from a young age that I wasn’t like other kids. I could not pinpoint what made me different with the exception to my extreme pessimism. It wasn’t until I was diagnosed with major depressive disorder at 14 that I became aware of why I was different. Because of this diagnosis and the fact that this was the mid-1990s, I was told by my parents to never bring it up. At the time they didn’t know any better since the stigma surrounding mental illness was so much worse than it is today. This just isolated me more. Aside from feeling different, I felt alone. I thought I was alone with my suffering, that no one else felt like I did.

Through the years, I have gone back and forth with depression and now anxiety to a point that I will not hide anymore. It is just too hard to keep it all in. I said screw it to the stigma and have become a huge advocate (and activist) for mental health. I had to, especially when my own child was diagnosed with an anxiety disorder at age 6 that was present for two years prior.

She felt alone and scared. She didn’t understand what was going on. She was a Nobody.

What is a Nobody? This is a Nobody:

Nobody_Cover_Sarah_Fader

And that is Nobody’s dog, Nobody. And they live Nowhere.

This is a children’s picture book written by Sarah Fader (Founder of Stigma Fighters and Eliezer Tristan Publishing) and her young preteen son, Ari. Like my daughter, Ari feels like a Nobody because of the struggles he has been through. Both have felt very “ERRRRGH” and have the need to not feel like a Nobody anymore.

How I wish this book was around when my daughter was diagnosed. It would have let her know that although she is different, she is not invisible and alone. She is not a Nobody. She is a Somebody.

Somebody, that is a human child that finds the Nobodys and tells them that they are important too. That they are seen. That makes the Nobodys feel special. That makes the Nobodys feel like Somebodys. I would love to tell you how it ends, but that would give away the whole story.

This is a great book to read to your young child that feels different, that feels like they do not fit in. It lets them know they are not alone and that there is always a Somebody out there for them.

Nobody is beautifully illustrated by Shari J. Ryan.

Okay, So Where Can I Find Nobody?

You can find Nobody by Sarah Fader and Ari Fader-Van Luyn at:

Eliezer Tristan Publishing: Nobody

Amazon: Nobody

Teen Suicide & Social Media

Over the weekend, a local 16-year-old girl took her life. A permanent solution to probably years of bullying.

And the bully laughed. Instead of stopping her, she watched her jump off the top deck of the mall parking garage. Then, she took a photo and posted it on social media warning people to stay away from the mall. If that wasn’t bad enough, she expressed joy that this young lady was dead and even remarked, “Rest in peace, bitch.”

It’s time we discussed teen suicide and the ramifications of it with the effects of social media.

When I was a senior in high school, a freshman took her life by hanging herself. We were all sad and confused. Even myself although I had been diagnosed with major depressive disorder four years earlier. I was still not fully aware of what goes through a person’s mind to think ending their life is the only way out. That quickly changed when I found myself sitting on the floor of my bedroom with a case cutter to my wrist debating slicing through a major artery. The numbness, the self-loathing, that feeling that the world would be better off without you in it. I understood then.

But I was in high school in the late 1990s… a generation without social media.

Now, I have a 12-year-old daughter. She is only 2 years shy of my first depression diagnosis and 4 years shy of the young woman who committed suicide. I constantly talk to her. She has known about suicide since she was eight because I was unwell and she was old enough to see that. Our discussion can be found in my post “Mommy Is Not Going To Kill Herself“. After learning of this teenager’s demise, I sat my daughter down for another discussion. I didn’t know if the school would bring it up, but I wanted her to know. I told her everything I knew. I told her about the young woman’s suicide and then I told her about the bully.

Her reaction was pretty much the same as mine as we are both highly emotionally and compassionate people. We were heartbroken upon hearing of this girl’s death. We were livid with the bully’s reaction.

How could someone be happy that another person committed suicide?! How can you express it on Snapchat and be okay with that?! How could you then degrade her by calling her a bitch?! I am sure like most teens she thought nothing would happen to her, that she is invincible. The local paper has pretty much kept the story hush-hush as these are minors and the police are still investigating.

The weird thing about all this… I had just watch Friday night’s Dateline concerning the Michelle Carter case. Michelle Carter is in prison for a couple of years because she coaxed her then boyfriend, Conrad Roy, to take his life. They were teens at the time. On the day of his death, he was having second thoughts and left his truck (where he would later die from carbon monoxide poisoning). Michelle told him to get back in and just do it. It is known as the “texting suicide case”.

This recent local event is somewhat similar. It involves teens and cell phones. I believe the Carter case has set a precedent. Will this local bully be charged with anything related to what she put on Snapchat? Who knows. There may be way more concerning the young woman and her bully on all forms of social media.

And that is the issue, isn’t it?! Social media. We can lay it all out there. Say anything we want and hide behind the cell phone or computer screen. The problem is, whatever you say on social media is there forever and it can come back to hurt you days or years later. But once again, teens think they are invincible. It’s time we told them they aren’t.

My heart breaks for the family and friends of this young woman. I am not sure what could have been done. Her parents lost a child. All these hopes and dreams they must have had for her, taken away by a teenage bully. The pain they must be going through. Then I think of the parents of the bully and the shitstorm that is coming their way. Are they in denial… my kid couldn’t do that, she is a perfect angel and so kind… or have they come to the realization that no matter how good of a parent they are, some kids can be mean, downright cruel and immune to others feelings, almost sociopathic. I hurt for those parents as well.

For  now, I weep internally (because of Lexapro I can’t externally). I cry for the young lady, her family and friends and for the parents of the bully. I am an empathetic creature and want to feel their pain. I will continue to talk with my daughter because I do not want her to become the bully or the victim.

It is Kindness Week at her middle school this week. Kind of fitting with recent events. Today is yellow or ‘joy’ day. I hope the school does mention this teenager’s suicide and the bulling. These kids are not little innocent beings anymore. They need to know because the person who is sitting next to them could be the one contemplating taking their life or the one causing pain and suffering to someone else. They need to know that death is permanent. They need to know that rude comments leave scars. They need to know the damage that can be done.

Teen suicide is real. If you know someone who is in trouble please push them to get help. If they are not willing, stand up and speak for them.2417122_1280x720

Living With Someone Who Is Mentally Ill: Interview with My Daughter

My daughter has seen it all. From her oceanic blue eyes in her cherub baby face to now, almost 12 years later. She is a remarkable child who has not only witnessed her mother’s hysterics (& panic attacks, drastic weight loss and days of not getting out of bed) but also her own diagnosis of Generalized Anxiety Disorder. My daughter, given the name Sophia Faye at birth, is the epitome of the meaning… “Wise Fairy”. Sophia is an old soul and understands so much for such a young person. Many words can be used to describe her but at the top of the list are definitely compassionate, empathetic, caring and loving. There are days I may miss her little toddling body and cheeky grins but I love watching her blossom into the amazing young lady she is today.

When I decided to do this interview series, I knew I had to interview her. I have not hid much from her. In fact 3 years ago I was so foregone I couldn’t. She learned about suicide at the tender age of 8 and questioned me often about it. She knows I grew to hate her as a newborn. I’ve always explained things to her in an age appropriate manner and often worried about her reactions but she has always listened, digested and never ever judged. I am amazed by her and couldn’t of asked for a better child.

Sophia’s Interview

Lounging in her preteen abode full of textured pillows and dozens of Stitch stuffed animals early in the evening, we both relaxed on her bed. There were many giggles beforehand as she pictured this interview as a video recording and not just a vocal recording. She was a little nervous, as was I, and we both tend to laugh a lot when we are nervous:

Me: How did you feel when I told you I grew to hate you when you were a baby?

Sophia: Fine.

Me: How come you were okay with it?

Sophia: Because I knew you didn’t mean it.

Concerning 3 years ago

Me: What did you feel and think when I left the house 3 years ago to stay with Bubbe & Grandpa (my parents) because Tyler (former foster son) was triggering me?

Sophia: I don’t remember that.

Me: It was only 3 years ago!

Sophia: Didn’t I come with you?

Me: You did.

Sophia: It was when he left?

Me: Yes.

Sophia: Oh, I mean, I was… I didn’t even notice anything was wrong with you. Like, I… I don’t really know. I felt fine because I didn’t know you were triggered.

Me: I left the house because I couldn’t stay there.

Sophia: But wasn’t I there too?

Me: I don’t think you came the first night.

Sophia: Oh. I don’t remember. I’m getting old!

Me (after rolling my eyes at that last statement): How did you feel when I admitted myself into the hospital?

Sophia: Scared.

Me: Did you know why I was there?

Sophia: No, I’m not sure. No.

Me: What did you think when you couldn’t visit me in the hospital and had to stay in the cafeteria with Grandpa?

Sophia: I wasn’t happy about it. I mean, I wanted to see you.

Me: You weren’t allowed to see me because they were worried about what the other people might say to you, what you might see.

Sophia: Oh, okay.

Me: Were you scared when I was released from the hospital?

Sophia: No, because I was happy you were going to leave and come home.

Me: You’ve been protecting me since the hospital stay. How come?

Sophia: Because I don’t want you to go back to the hospital.

GAD, PPD, Depression, & Suicide

Me: Do you blame me for your Generalized Anxiety Disorder and it is okay if you do?

Sophia: No.

Me: Do you blame anyone for it?

Sophia: No. Why would I?

Me: Do you wish you were ‘normal’?

Sophia: Sometimes.

Me: If you didn’t worry about the things you worry about?

Sophia: Sometimes, because sometimes it is good to worry.

Me: Do you fear you’ll have Postpartum Depression and Anxiety because I had it?

Sophia: Sometimes.

Me: Do you worry or fear you’ll have a Depressive Disorder because I have one?

Sophia: I don’t usually think about it. I guess, but that is only when I think about it.

Me: Do you know when I was first diagnosed (with Depression)?

Sophia: You were 14.

Me: And how old are you?

Sophia: I am 11.

Me: So you are close to that age.

Sophia: Yeah.

Me: That’s why I watch you a lot.

Sophia: That’s not creepy.

Me: Not in that sense Sophia. I’m not stalking you… Are you worried I will commit suicide?

Sophia: Very much.

Me: How come?

Sophia: You told me how you took that can cutter thing (a case cutter) and almost cut your hand off (almost slit my wrist).

Me: I was 18 then.

Sophia: So?

Me: That was 20 years ago.

Sophia: You also said that if you go off of medicine you’re probably going to want to commit suicide the next time you have an episode (of Major Depressive Disorder).

Me: Are you worried I will hurt myself?

Sophia: Yeah.

Me: Do you think there will be a next time?

Sophia: Yes, just because of events that can happen in the future.

Me: Like what?

Sophia: Like Bubbe & Grandpa dying or like the kitties dying and stuff.

Me: Do you think because of what I have been through that I am too overprotective with you about Mental Illness?

Sophia: Sometimes. There is no reason you should be.

Me: Do you understand why I am?

Sophia: Yeah. Because you don’t want me to get Depression and stuff.

Stigma & Advocacy

Me: What have I told you about stigma?

Sophia: What does stigma mean again?

Me: Hard to define but how people think the Mentally Ill are a danger to our society, that you should be hush-hush about it because people may not hire you, people may not want to be your friend, people don’t believe it is real.

Sophia: You’ve told me.

Me: And what do you think about that?

Sophia: I mean if that’s what they think, that’s what they think.

Me: Because you know that one of your grandparents thinks that way.

Sophia: Well, yeah, but…

Me: How do you feel knowing that you have Generalized Anxiety Disorder and you have a grandparent that doesn’t believe it exists?

Sophia: Well, that’s what he can think.

Me: Do you understand why I advocate for this?

Sophia: What does that mean, advocate?

Me: Why I share my story. Why I try to teach others.

Sophia: Yes.

Me: Do you see yourself doing that?

Sophia: I don’t know.

Thoughts on Me, Her Mom

Me: Do you think I am a bad mother?

Sophia: No. Not at all. Why would I think you were?

Me: Do you ever wish you had a mother that wasn’t like this?

Sophia: No.

Me: Did you ever think I was a bad mother?

Sophia: No.

Me: How do you characterize your mother?

Sophia: Worried, anxious, fun, caring, loving, sometimes depressed.

Me: Do you always related Mental Illness stuff to your mom?

Sophia: Like different things other than Postpartum?

Me: Well I have had Depression since I was 14. There have been others thrown in there.

Sophia: When I think of Depression I don’t think of you as ‘Oh, she’s depressed’, I think ‘she is still alive and she is strong’.

Me: You see me as strong and a fighter?

Sophia: Yeah.

Me: What traits do you hope you get from me or do you see you already have gotten?

Sophia: I want to get your determination and your strength and sometimes your empathy because a lot of times empathy is good and I want your mental strength.

Me: Any last comments on me, your mother?

Sophia: I love her.

Me: Would you want any other mother besides me?

Sophia: No.

Me: How much do you love me?

Sophia: To infinity and beyond!

I am truly grateful for this kid!

Living With Someone Who Is Mentally Ill: Interview with My Husband

I was approached by a friend of mine who offered up the suggestion on doing an interview series with family members on what their thoughts and feelings were concerning my Mental Illnesses.  I have to admit, I had been toying with this idea for a long time and at this request, felt it was the time to actually commit to the series.

Since it is May and Mental Health Awareness Month, I knew that I wanted to publish these now.  As much as we (those of us diagnosed) feel and think about when we are deep in the depths of Depression, Anxiety, Bipolar Disorder, Schizophrenia, Borderline Personality Disorder, etc., what do those close to us feel?  Do they feel as hopeless? Do they feel frustrated with us? Are they so angry they are wondering why they are with us?

I interviewed my husband this past weekend (my daughter and parents interviews will follow).  This is a man who has been with me for almost 22 years, since we were teenagers.  He has witnessed 5 out of my 6 episodes of Major Depressive Disorder.  He has been through my hospitalizations, my self-loathing, my hysterical thoughts.  And he stays.  A lot of what I asked him, I knew the answers to (I mean, hey, we’ve been together for over 2 decades!), but he did shock me with a few.

I present below my interview with my loving husband, Jimmy.

The Interview

Picture it, Master Bedroom, a late Saturday afternoon in May in New England.  I greet my husband and thank him for participating.  He nods.  He is not a wordy person which is shocking by some of his answers:

S. Paige:  What were your 1st thoughts and feelings after witnessing my episode of MDD in college where I slammed doors and pushed you out?

Jimmy:  I felt I had done something wrong to make you feel, like, the way you were feeling.

S. Paige:  Were you angry? Were you upset?

Jimmy: Defeated.

S. Paige:  What made you call my parents then?

Jimmy: I don’t remember doing that.  (He did in fact call my parents and filled them in on what was going on with me.  I received a phone call from my therapist that evening and then the campus psychologist the next day.)

Episode 4: Postpartum Depression & Anxiety

S. Paige: Okay, let’s go to something more recent. What did you think and feel when you got the phone call that I was at the hospital after Sophia was born (for severe postpartum depression & anxiety)?

Jimmy: … I don’t know.  I didn’t know what to think or feel.  I didn’t feel.

S. Paige: Were you worried? Were you wondering what the heck was wrong?

Jimmy: No.  I just thought that is what happened (after childbirth).  You had a hormone crash.  You had baby blues.  I didn’t realize you weren’t sleeping well.  I didn’t realize it was a thing.

S. Paige:  Did you realize I was vomiting all the time?

Jimmy:  No, I knew you were taking Ensure.

S. Paige:  Were you and I living in the same house at that time?!  You went to therapy with me.  You went to the psychiatrist with me.  You weren’t concerned at all?

Jimmy:  I don’t recall going to the therapist.

S. Paige:  This is proving to be a really valuable interview (sarcasm)

Jimmy:  I blocked these bad memories out.

S. Paige:  How were those 12 days when I was in short-term psych (I admitted myself exactly 1 month after our daughter was born)?

Jimmy:  Non stop.  I didn’t have time for, like, myself.  I was always visiting you or taking care of Sophia or with your parents or at work.  I had no time for me.

S. Paige:  Did that strain you?

Jimmy:  I’ll never eat at a KFC ever again.

S. Paige: (perplexed) Why? What does KFC have to do with this?

Jimmy:  Because that is where I would eat from the train station on the way to the hospital.  The KFC on North Street.  And I just can’t eat at a KFC ever again because I link the two together.

S. Paige: So it is a trigger?

Jimmy:  Yes.

S. Paige:  How were you able to continue with that schedule?

Jimmy:  Because I knew it would end eventually.  There was light at the end of the tunnel.  I know you didn’t see the light, but I could.

S. Paige:  I feel guilty for that (putting him in this position).  Do you know that?

Jimmy:  It’s what I am here for.  I’m the husband.

Episode 6: My 2nd Hospitalization / A Next Time?

S. Paige:  How did you feel when I went back to the hospital?

Jimmy:  I had gotten used to it.  It’s just like a part of you.  Every decade or so, you’re going to have to spend a couple of weeks in the hospital.  I don’t know.  I’ve just accepted it.

S. Paige:  Are you okay with that?

Jimmy:  Okay-ish.  I would rather you not have to do that.  But, it is part of who you are.  That every time some major event occurs in your life and for whatever reason you can’t adjust to the change it is always a possibility that you could end up in the hospital for a week or two.

S. Paige:  Do you worry about a next time?

Jimmy:  No.

S. Paige:  Do you think there will be a next time?

Jimmy:  Probably.

S. Paige:  Do you ever fear I won’t recover?

Jimmy:  Depends on your definition of recover.  So like hopped up on mega does of anti-psychotics for your life type never recover?

S. Paige:  Yes.

Jimmy:  Yeah, that’s a concern.

S. Paige:  What would you do?

Jimmy:  I don’t know.  I don’t want to think about it.

S. Paige:  Do you fear I will take my own life?

Jimmy:  No.

S. Paige:  How are you so sure?

Jimmy:  I… don’t know.  I’m not so sure, but I am pretty sure.

Stigma

S. Paige:  How did you feel about having your wife in the psych ward?  Did that seem normal to you?  Seem weird?  Did stigma play into it?

Jimmy:  No.  Because… its… its… maybe for the people of the older generation than us.  I might not tell them directly that my wife is a ‘nut job’ and she’s spent time in the psych ward but people our generation and younger are much more accepting of medication and therapy and needing inpatient stuff but I might not be as open to the older generation.

S. Paige:  Taking the older generation into account, how do you feel when your father says…

Jimmy: (cut me off) He’s an idiot.

S. Paige:  I didn’t even get the question out.

Jimmy:  It doesn’t matter.  But he’s my father and its not like I can say anything bad to him because he’s a Catholic father and because you haven’t grown up in a Catholic family you don’t know.

S. Paige:  No, I don’t know.  But you have a wife and daughter with Mental Illness diagnoses’.

Jimmy:  I’m not going to change him so I just accept the fact that he’s and idiot and ignore him as best as I can.

Our Daughter, Sophia

S. Paige:  As a parent, do you worry that she’ll be like me?

Jimmy:  I worry she is going to be like me.

S. Paige:  Why, what’s wrong with you?

Jimmy:  I’m an antisocial, geeky, anxiety riddled ‘nutto’.

S. Paige:  You do not have a disorder.  You have moments of anxiety.  She has one already.  With teenage years and hormones do you worry she’ll follow in my footsteps?

Jimmy:  No, you’re still alive and you’re 38.  She’ll make it through.  It’s part of who you are, it is part of who she is.  I wouldn’t want to change either of you two.

S. Paige:  Do you think because of what I went through, we’re better equipped to deal with Sophia if she does fall victim to depression?  I know we have definitely done better dealing with her anxiety.

Jimmy:  I just hope we’re not biased.

S. Paige: That concerns me.

Jimmy:  I mean you’re super biased towards never going on medication.

(FYI, I am medicated and fine with it)

S. Paige:  It’s not that I’m biased, it’s just…

Jimmy:  … like it’s a sign you’re headed down that slope.

S. Paige:  Yeah.

Jimmy:  And I’m just like yeah, whatever, if it makes the slope less steep than who cares?!

Changing Me

S. Paige:  Did you ever just want to ‘slap’ the anxiety and depression out of me?

Jimmy:  No.

S. Paige:  Do you wish I didn’t have either one?

Jimmy:  Interesting question.  It’s hard to answer.  Because it’s part of you and I love you.  But would not having it make you better or different?

S. Paige:  Do you think we would have had more children if I didn’t have anxiety & depression?

Jimmy: Yes.

S. Paige:  How do you feel overall with this (pointing to self)?

Jimmy:  It’s interesting.  What’s the point of living life if it isn’t interesting?!

S. Paige:  Why do you stay?  Times I’ve said go, leave me, take Sophia.  I’m a disaster, you deserve more.

Jimmy:  I need you.

 

And lastly…

 

S. Paige:  What would you say to a husband/father who was going through this with his wife or child for the first time?

Jimmy:  Persevere, because there is light at the end of the tunnel and it isn’t an oncoming train.  It is really the end of the tunnel.  It will get better.

When All You Can Do Is Blame Yourself For Your Daughter’s Diagnosis

I tried to hold my tears back as I stared into my daughter’s oceanic blue eyes.  I could feel them welling up, feel the moisture increasing.

Not here, not now, not in public, Stephanie.

But, to be cliché, the dam was about to break.  A tear or two escaped.  My daughter was concerned and relayed this to her father on the phone.  She handed my cellphone back to me and my husband proceeded to ask, “Are you okay?”  No, no I wasn’t okay, but do I tell him that?  The silence was broken as he asked again.  I told him the truth because even if I lied and told him I was okay, he knew I wasn’t.

I am about to cry,” I uttered quietly so the other patrons could not hear me.  My daughter and I were waiting for our dinner order to be ready at our favorite sandwich shop in town.  It was last Friday evening, the start of the weekend, and my husband’s Friday to geek out and play Magic.  He wanted to stay home with me.  I told him no, I didn’t want him to blame me for not being able to play (even though he wouldn’t, it was all in my head).  I told him this knowing full well that I wanted his support but feeling I didn’t deserve it.

Our food order was ready and we went home passing my husband’s car on the way.  When we pulled into the garage, my tears flowed like a high pressure hose.  My daughter wanted to know what was wrong although she could somewhat guess as she has been a witness to me, her mother, for the last eleven years.

“It’s my fault, it’s all my fault.”  My lamentation increasing as these words escaped my mouth.

“What is your fault, Mommy?”

“That you are the way you are.  It is my fault.”

My daughter has been diagnosed with Generalized Anxiety Disorder since she was 6 and has struggled off and on with it over the last 5 years.  This year has been extremely hard on her and because of it, hard on me.  She has been in therapy since the fall and because of some reactions she has had during her anxiety attacks the past month, it has recently been suggested that she get evaluated by a psychiatrist.

When the recommendation was first made to me by her therapist, I have to say I was a bit shocked.  I guess I never thought that her Anxiety warranted a psychiatric evaluation.  After a few hours, I have to admit the stigma against Mental Illness set in; her seeing a psychiatrist would really mark her as someone who is mentally ill.  I hurt for her.  My husband and I discussed the evaluation with her.  She has learned about the stigma, has learned to stand up to it (from her Mom of course).  But even this, having the word “psychiatrist” associated with her name, caused her to want to hide.  She instantly thought she would be medicated.  Eventually, she became okay with the evaluation that is set to be done in another week and a half.

All this got to me.  It pulled at my heart, tore holes, ate away at it.  The biggest fear I had when becoming a parent is that I would pass on my Depression and Anxiety to her and I have.  Her being in therapy never bothered me.  I am a firm believer that most people would benefit from therapy regardless of a Mental Illness diagnosis.  It was the mention of “psychiatrist”.  To me, like my daughter, I associate “psychiatrist” with “medication”.  Throw in the word “evaluation” and I was losing it.  I held back my emotions for the sake of my daughter, but I knew eventually they would become very visible.

I spoke with my therapist about it.  He told me it wasn’t my fault.  I said, “How?  How is it not my fault?!  She suffers the way I do.  I never wanted her to and now she is.  It’s only going to get worse.”  He logically said that this is something I did not give her on purpose.  There was no way of knowing whether she would be Mentally Ill or not.

“But I gave it to her.  It is my genetics that did this.  She is becoming me.”

No matter how many people tell me it is not my fault (heck, even my intelligent daughter tells me), I still cannot stop blaming myself.  I can’t kick this feeling.  She is already experiencing more than I ever did at her age.  I mean, I wasn’t even diagnosed until 14 and here she is at 11 with 5 years of Anxiety under belt.  Maybe I am transferring myself onto her to an extent, already predicting more suffering in her future getting worse and worse as she ages like it has for me.  No parent wants to see their child endure pain and illness.  In this case, I didn’t want her to endure the thoughts that I have felt, the fear I have felt, the hopelessness that I have felt.  I didn’t want her holding a case cutter to her wrist.  I didn’t want her desiring to stick something in her brain to end the constant negative thinking.

And yet it is beginning.  The fear is already inside of her.  And it was all my fault.  How could I, someone who has battled Depression and Anxiety for over 24 years, not feel blame?  More importantly, how can I stop feeling blame?

Teaching My Daughter To Rise Above The Stigma Of Mental Illness

My daughter has seen me. She has seen me throughout her eleven years of life.  She has seen me lose touch with reality several times, seen me cry uncontrollably many times, seen me at a handful of Psychiatric and Therapy appointments.  She has even seen me become hospitalized.  Throughout all of this, she has stood by my side supporting me any way a preteen can.  She will get me my medication and water when I have an anxiety attack.  She will tell me she doesn’t want any other Mommy when I say she deserves better.  She fights the stigma behind Mental Illness for me to “infinity and beyond” (A Toy Story line that defines how much we love each other).

 

But, even with all that she does to help me, she falls victim to the stigma when it comes to herself.

 

My daughter was diagnosed at age 6 with Generalized Anxiety Disorder, a diagnosis that she deserved even at age 4. She feared doctors or, honestly, anything medical.  She catastrophized thoughts in her mind constantly thinking that she could catch diseases such as Ebola and Rabies just by breathing it in.  While these medically induced anxieties faded through the years she still tends to get overwhelmed and will have minor Panic Attacks over things that she can’t control.  She is easily frustrated.  She cries. She’s a worrier, and a huge Empath like myself.

 

There have been several occasions where school was a trigger. When she started elementary school, they placed my daughter in the Special Friends program at my request.  It was a program dedicated to giving young children a place to relax for an hour and talk about their feelings.  I loved this program.  She aged out after 2nd Grade .  At this point we started therapy for her to learn coping skills for when anxiety attacks hit.  This helped for a while and she was able to stop therapy for a year or two.  Enter a few major life events, moving and entering Middle School, and her anxieties came back full force.  Insomnia set in.  Panic Attacks over homework became present and therapy sessions returned.

 

Through all of this, I have been her advocate. I do not want to see her suffer the way I have.  There was a brief discussion last year with the school nurse about possibly getting her further help, such as a 509 report, within the school system.  She had been sent home because she threw up.  The nurse knew right away after seeing my daughter through the years that this was related to her GAD, but due to the rules, I had to pick my daughter up and keep her home for 24 hours.  The nurse said that if this was in her file, she could return to school the next day bypassing the required 24 hours.  I thought heavily on this and suggested to my daughter that we get the school more involved.  Her response:

 

“I don’t want special treatment. There are kids that need it more.”

 

I respected that answer since the school year was almost over and we were switching school systems. She started Middle School and things were okay for a short period of time.  Then I noticed her getting heavily overwhelmed, crying and panicking.  I brought the subject of getting more help from the school with her again.  She hesitated and replied:

 

“I don’t want special treatment.”

 

I explained to her that it wasn’t special treatment. Her diagnosis, which is in her medical file at the school, would be more known so that if she did have further issues, she could receive the help she needed, whether it be visits to the school Psychologist or extra time on a test.  Then she started to tear up a bit and said, “No, I don’t want it.  The kids will make fun of me and my friends won’t like me anymore.”

 

Oh boy. Enter the Mental Health stigma.  Because I have been fighting it so long, the huge advocate in me came out and I may have reacted a tad too intimidating for an 11-year-old.  I was angry.  I thought the world has become slightly better with Mental Illness, but I was wrong.  I spoke, with a seething rage inside my head, sternly to my daughter:

 

“Do not feel that way at all. Do not, for one second, be ashamed of your diagnosis.  So, you have an Anxiety Disorder.  You have no idea what other kids at your school may have.  Most likely a few of your friends have one too.  All that, all that you just said, that is the stigma talking.  You do not have to hide like I did.”

 

She began to cry a little. She knew I was right especially after being such a support and advocate for me.  She nodded her head, apologized, and went upstairs.  I didn’t know if it really sunk in, the words I said until one afternoon she came home from school and was excited to show me a video she was working on in school in one of her classes.  I sat and watched the video and was so enamored and proud of this child.  Here she stood, in the crowded hallways of her school talking about her Anxiety Disorder.  She didn’t care if anyone heard her.  She spoke confidently about coping skills and therapy.  My daughter isn’t hiding anymore.  She’s kicking the stigma to the curb just like her mom.

Struggling To Help My Daughter…


My daughter is a bright, caring, empathetic, preteen girl.  Most days she has a smile on her face that melts her mom’s heart.  She is typical preteen, mostly caring about binge-watching shows on Netflix or catching up on her friend’s latest YouTube videos featuring her fave, Beanie Boos.  She does well in school, is friendly to everyone, and is respectful of others.
She also has Generalized Anxiety Disorder (GAD).
When she was diagnosed at age 6, I did everything I could to help her.  I got her into a special group at her school, inquired information from her doctor and read up on anything I could get my hands on.  I have plenty of experience with adult GAD, but I haven’t a clue on what to do for childhood Anxiety.  The school group helped immensely and then she aged out of the program.  She was doing well until a major life event occurred in our household.  We were fostering-to-adopt but had to give this child back to DCF because of my declining mental health.  Her GAD came back full force.  This time we sought out therapy.  While she got help, so did I for my Depression and Anxiety.
In the last 2 ½ years, my daughter has been doing great with only minor hiccups.
Then we decided to move to give her a better education as she starts Middle School, another major life change.
My husband and I do not hide things from her and she knew from the beginning about the move.  She helped us in choosing where we would live (ultimately her input was minor).  We wanted her to embrace this change.  She was excited as she will be in school with her best friend now.  We thought she was handling this well.
And then sleep disturbances set in.  
My daughter has always been a good sleeper; I have never experience this before even with her past episodes of GAD.  As the moving date approaches, her sleep disturbances have become full fledge episodes of Insomnia and I, as her mother, feel completely helpless.  Here I am, a woman who has struggled with Depression and Anxiety for most of my life and I can’t help her.  For me, the solution comes in the form of medication that I take nightly.  For her, at age 10, there is no medicinal help.  At first we tried simple solutions by telling her to read, it will tire her eyes.  That didn’t work.  
As night 3 was approaching, I became extremely concerned.  I could vividly remember what I felt like and how I reacted to night 4 of Insomnia for me.  I remember the tears and the strong desire to sleep.  I remember the immense amount of thoughts that bounced in and out of my mind.  I remember the extreme irritation and delusional thinking I had during the day.  I was desperate to give my child relief.  
I suggested she use my weighted blanket.  She refused.
I suggested mindfulness meditation.  She refused. 
I suggested my Therapist’s 4-square breathing technique (breathe in for 4 seconds, hold for 4 seconds, breathe out for 4 seconds, repeat 4 times) which has worked for me a few times.  She was hesitant but decided to give it a shot.  It didn’t work.
Night 4 brought on the only pseudo-medicinal thing I could try with her… Melatonin.  I cut my 3mg pill in half.  Nope, still didn’t work.  She was in tears.  She just wanted to sleep and I completely understood this all too well.  I explained that she needed to distract herself, try not to just lay in bed.  I suggested reading, writing, journaling, drawing, coloring and lastly, watching stuff on her Kindle (which I set to the night mode that turns off the harming blue light).  She slept only 7 hours that night, barely enough for an adult.
Last night, night 5, I finally convinced her to use my weighted blanket.  I thought we may have found the solution as all was quiet.  Then I heard her come downstairs at 11pm.  After about 15 minutes, she returned to her room.  This morning she said that she sat crying in her room and eventually fell asleep around midnight.  She woke up at 6:10am.  6 hours of sleep.
I don’t know what to do.  She is declining rapidly.  The recommended amount of sleep for a child her age is 9-12 hours.  She has not had anywhere close to this in five days.  My sleep is becoming disturbed worrying about her.  I do not know how to help her anymore.  I am struggling as I feel the sense of blame coming back… she is like this because of me.  My GAD worries that she will never sleep again, always jumping to the worst conclusion.  I cry for her.  I blame myself for her struggles with this illness.  I am pondering therapy again, but that isn’t going to fix her problem quickly.  How can I help my daughter?