Living With Someone Who Is Mentally Ill: Interview with My Daughter

My daughter has seen it all. From her oceanic blue eyes in her cherub baby face to now, almost 12 years later. She is a remarkable child who has not only witnessed her mother’s hysterics (& panic attacks, drastic weight loss and days of not getting out of bed) but also her own diagnosis of Generalized Anxiety Disorder. My daughter, given the name Sophia Faye at birth, is the epitome of the meaning… “Wise Fairy”. Sophia is an old soul and understands so much for such a young person. Many words can be used to describe her but at the top of the list are definitely compassionate, empathetic, caring and loving. There are days I may miss her little toddling body and cheeky grins but I love watching her blossom into the amazing young lady she is today.

When I decided to do this interview series, I knew I had to interview her. I have not hid much from her. In fact 3 years ago I was so foregone I couldn’t. She learned about suicide at the tender age of 8 and questioned me often about it. She knows I grew to hate her as a newborn. I’ve always explained things to her in an age appropriate manner and often worried about her reactions but she has always listened, digested and never ever judged. I am amazed by her and couldn’t of asked for a better child.

Sophia’s Interview

Lounging in her preteen abode full of textured pillows and dozens of Stitch stuffed animals early in the evening, we both relaxed on her bed. There were many giggles beforehand as she pictured this interview as a video recording and not just a vocal recording. She was a little nervous, as was I, and we both tend to laugh a lot when we are nervous:

Me: How did you feel when I told you I grew to hate you when you were a baby?

Sophia: Fine.

Me: How come you were okay with it?

Sophia: Because I knew you didn’t mean it.

Concerning 3 years ago

Me: What did you feel and think when I left the house 3 years ago to stay with Bubbe & Grandpa (my parents) because Tyler (former foster son) was triggering me?

Sophia: I don’t remember that.

Me: It was only 3 years ago!

Sophia: Didn’t I come with you?

Me: You did.

Sophia: It was when he left?

Me: Yes.

Sophia: Oh, I mean, I was… I didn’t even notice anything was wrong with you. Like, I… I don’t really know. I felt fine because I didn’t know you were triggered.

Me: I left the house because I couldn’t stay there.

Sophia: But wasn’t I there too?

Me: I don’t think you came the first night.

Sophia: Oh. I don’t remember. I’m getting old!

Me (after rolling my eyes at that last statement): How did you feel when I admitted myself into the hospital?

Sophia: Scared.

Me: Did you know why I was there?

Sophia: No, I’m not sure. No.

Me: What did you think when you couldn’t visit me in the hospital and had to stay in the cafeteria with Grandpa?

Sophia: I wasn’t happy about it. I mean, I wanted to see you.

Me: You weren’t allowed to see me because they were worried about what the other people might say to you, what you might see.

Sophia: Oh, okay.

Me: Were you scared when I was released from the hospital?

Sophia: No, because I was happy you were going to leave and come home.

Me: You’ve been protecting me since the hospital stay. How come?

Sophia: Because I don’t want you to go back to the hospital.

GAD, PPD, Depression, & Suicide

Me: Do you blame me for your Generalized Anxiety Disorder and it is okay if you do?

Sophia: No.

Me: Do you blame anyone for it?

Sophia: No. Why would I?

Me: Do you wish you were ‘normal’?

Sophia: Sometimes.

Me: If you didn’t worry about the things you worry about?

Sophia: Sometimes, because sometimes it is good to worry.

Me: Do you fear you’ll have Postpartum Depression and Anxiety because I had it?

Sophia: Sometimes.

Me: Do you worry or fear you’ll have a Depressive Disorder because I have one?

Sophia: I don’t usually think about it. I guess, but that is only when I think about it.

Me: Do you know when I was first diagnosed (with Depression)?

Sophia: You were 14.

Me: And how old are you?

Sophia: I am 11.

Me: So you are close to that age.

Sophia: Yeah.

Me: That’s why I watch you a lot.

Sophia: That’s not creepy.

Me: Not in that sense Sophia. I’m not stalking you… Are you worried I will commit suicide?

Sophia: Very much.

Me: How come?

Sophia: You told me how you took that can cutter thing (a case cutter) and almost cut your hand off (almost slit my wrist).

Me: I was 18 then.

Sophia: So?

Me: That was 20 years ago.

Sophia: You also said that if you go off of medicine you’re probably going to want to commit suicide the next time you have an episode (of Major Depressive Disorder).

Me: Are you worried I will hurt myself?

Sophia: Yeah.

Me: Do you think there will be a next time?

Sophia: Yes, just because of events that can happen in the future.

Me: Like what?

Sophia: Like Bubbe & Grandpa dying or like the kitties dying and stuff.

Me: Do you think because of what I have been through that I am too overprotective with you about Mental Illness?

Sophia: Sometimes. There is no reason you should be.

Me: Do you understand why I am?

Sophia: Yeah. Because you don’t want me to get Depression and stuff.

Stigma & Advocacy

Me: What have I told you about stigma?

Sophia: What does stigma mean again?

Me: Hard to define but how people think the Mentally Ill are a danger to our society, that you should be hush-hush about it because people may not hire you, people may not want to be your friend, people don’t believe it is real.

Sophia: You’ve told me.

Me: And what do you think about that?

Sophia: I mean if that’s what they think, that’s what they think.

Me: Because you know that one of your grandparents thinks that way.

Sophia: Well, yeah, but…

Me: How do you feel knowing that you have Generalized Anxiety Disorder and you have a grandparent that doesn’t believe it exists?

Sophia: Well, that’s what he can think.

Me: Do you understand why I advocate for this?

Sophia: What does that mean, advocate?

Me: Why I share my story. Why I try to teach others.

Sophia: Yes.

Me: Do you see yourself doing that?

Sophia: I don’t know.

Thoughts on Me, Her Mom

Me: Do you think I am a bad mother?

Sophia: No. Not at all. Why would I think you were?

Me: Do you ever wish you had a mother that wasn’t like this?

Sophia: No.

Me: Did you ever think I was a bad mother?

Sophia: No.

Me: How do you characterize your mother?

Sophia: Worried, anxious, fun, caring, loving, sometimes depressed.

Me: Do you always related Mental Illness stuff to your mom?

Sophia: Like different things other than Postpartum?

Me: Well I have had Depression since I was 14. There have been others thrown in there.

Sophia: When I think of Depression I don’t think of you as ‘Oh, she’s depressed’, I think ‘she is still alive and she is strong’.

Me: You see me as strong and a fighter?

Sophia: Yeah.

Me: What traits do you hope you get from me or do you see you already have gotten?

Sophia: I want to get your determination and your strength and sometimes your empathy because a lot of times empathy is good and I want your mental strength.

Me: Any last comments on me, your mother?

Sophia: I love her.

Me: Would you want any other mother besides me?

Sophia: No.

Me: How much do you love me?

Sophia: To infinity and beyond!

I am truly grateful for this kid!

When All You Can Do Is Blame Yourself For Your Daughter’s Diagnosis

I tried to hold my tears back as I stared into my daughter’s oceanic blue eyes.  I could feel them welling up, feel the moisture increasing.

Not here, not now, not in public, Stephanie.

But, to be cliché, the dam was about to break.  A tear or two escaped.  My daughter was concerned and relayed this to her father on the phone.  She handed my cellphone back to me and my husband proceeded to ask, “Are you okay?”  No, no I wasn’t okay, but do I tell him that?  The silence was broken as he asked again.  I told him the truth because even if I lied and told him I was okay, he knew I wasn’t.

I am about to cry,” I uttered quietly so the other patrons could not hear me.  My daughter and I were waiting for our dinner order to be ready at our favorite sandwich shop in town.  It was last Friday evening, the start of the weekend, and my husband’s Friday to geek out and play Magic.  He wanted to stay home with me.  I told him no, I didn’t want him to blame me for not being able to play (even though he wouldn’t, it was all in my head).  I told him this knowing full well that I wanted his support but feeling I didn’t deserve it.

Our food order was ready and we went home passing my husband’s car on the way.  When we pulled into the garage, my tears flowed like a high pressure hose.  My daughter wanted to know what was wrong although she could somewhat guess as she has been a witness to me, her mother, for the last eleven years.

“It’s my fault, it’s all my fault.”  My lamentation increasing as these words escaped my mouth.

“What is your fault, Mommy?”

“That you are the way you are.  It is my fault.”

My daughter has been diagnosed with Generalized Anxiety Disorder since she was 6 and has struggled off and on with it over the last 5 years.  This year has been extremely hard on her and because of it, hard on me.  She has been in therapy since the fall and because of some reactions she has had during her anxiety attacks the past month, it has recently been suggested that she get evaluated by a psychiatrist.

When the recommendation was first made to me by her therapist, I have to say I was a bit shocked.  I guess I never thought that her Anxiety warranted a psychiatric evaluation.  After a few hours, I have to admit the stigma against Mental Illness set in; her seeing a psychiatrist would really mark her as someone who is mentally ill.  I hurt for her.  My husband and I discussed the evaluation with her.  She has learned about the stigma, has learned to stand up to it (from her Mom of course).  But even this, having the word “psychiatrist” associated with her name, caused her to want to hide.  She instantly thought she would be medicated.  Eventually, she became okay with the evaluation that is set to be done in another week and a half.

All this got to me.  It pulled at my heart, tore holes, ate away at it.  The biggest fear I had when becoming a parent is that I would pass on my Depression and Anxiety to her and I have.  Her being in therapy never bothered me.  I am a firm believer that most people would benefit from therapy regardless of a Mental Illness diagnosis.  It was the mention of “psychiatrist”.  To me, like my daughter, I associate “psychiatrist” with “medication”.  Throw in the word “evaluation” and I was losing it.  I held back my emotions for the sake of my daughter, but I knew eventually they would become very visible.

I spoke with my therapist about it.  He told me it wasn’t my fault.  I said, “How?  How is it not my fault?!  She suffers the way I do.  I never wanted her to and now she is.  It’s only going to get worse.”  He logically said that this is something I did not give her on purpose.  There was no way of knowing whether she would be Mentally Ill or not.

“But I gave it to her.  It is my genetics that did this.  She is becoming me.”

No matter how many people tell me it is not my fault (heck, even my intelligent daughter tells me), I still cannot stop blaming myself.  I can’t kick this feeling.  She is already experiencing more than I ever did at her age.  I mean, I wasn’t even diagnosed until 14 and here she is at 11 with 5 years of Anxiety under belt.  Maybe I am transferring myself onto her to an extent, already predicting more suffering in her future getting worse and worse as she ages like it has for me.  No parent wants to see their child endure pain and illness.  In this case, I didn’t want her to endure the thoughts that I have felt, the fear I have felt, the hopelessness that I have felt.  I didn’t want her holding a case cutter to her wrist.  I didn’t want her desiring to stick something in her brain to end the constant negative thinking.

And yet it is beginning.  The fear is already inside of her.  And it was all my fault.  How could I, someone who has battled Depression and Anxiety for over 24 years, not feel blame?  More importantly, how can I stop feeling blame?

Teaching My Daughter To Rise Above The Stigma Of Mental Illness

My daughter has seen me. She has seen me throughout her eleven years of life.  She has seen me lose touch with reality several times, seen me cry uncontrollably many times, seen me at a handful of Psychiatric and Therapy appointments.  She has even seen me become hospitalized.  Throughout all of this, she has stood by my side supporting me any way a preteen can.  She will get me my medication and water when I have an anxiety attack.  She will tell me she doesn’t want any other Mommy when I say she deserves better.  She fights the stigma behind Mental Illness for me to “infinity and beyond” (A Toy Story line that defines how much we love each other).

 

But, even with all that she does to help me, she falls victim to the stigma when it comes to herself.

 

My daughter was diagnosed at age 6 with Generalized Anxiety Disorder, a diagnosis that she deserved even at age 4. She feared doctors or, honestly, anything medical.  She catastrophized thoughts in her mind constantly thinking that she could catch diseases such as Ebola and Rabies just by breathing it in.  While these medically induced anxieties faded through the years she still tends to get overwhelmed and will have minor Panic Attacks over things that she can’t control.  She is easily frustrated.  She cries. She’s a worrier, and a huge Empath like myself.

 

There have been several occasions where school was a trigger. When she started elementary school, they placed my daughter in the Special Friends program at my request.  It was a program dedicated to giving young children a place to relax for an hour and talk about their feelings.  I loved this program.  She aged out after 2nd Grade .  At this point we started therapy for her to learn coping skills for when anxiety attacks hit.  This helped for a while and she was able to stop therapy for a year or two.  Enter a few major life events, moving and entering Middle School, and her anxieties came back full force.  Insomnia set in.  Panic Attacks over homework became present and therapy sessions returned.

 

Through all of this, I have been her advocate. I do not want to see her suffer the way I have.  There was a brief discussion last year with the school nurse about possibly getting her further help, such as a 509 report, within the school system.  She had been sent home because she threw up.  The nurse knew right away after seeing my daughter through the years that this was related to her GAD, but due to the rules, I had to pick my daughter up and keep her home for 24 hours.  The nurse said that if this was in her file, she could return to school the next day bypassing the required 24 hours.  I thought heavily on this and suggested to my daughter that we get the school more involved.  Her response:

 

“I don’t want special treatment. There are kids that need it more.”

 

I respected that answer since the school year was almost over and we were switching school systems. She started Middle School and things were okay for a short period of time.  Then I noticed her getting heavily overwhelmed, crying and panicking.  I brought the subject of getting more help from the school with her again.  She hesitated and replied:

 

“I don’t want special treatment.”

 

I explained to her that it wasn’t special treatment. Her diagnosis, which is in her medical file at the school, would be more known so that if she did have further issues, she could receive the help she needed, whether it be visits to the school Psychologist or extra time on a test.  Then she started to tear up a bit and said, “No, I don’t want it.  The kids will make fun of me and my friends won’t like me anymore.”

 

Oh boy. Enter the Mental Health stigma.  Because I have been fighting it so long, the huge advocate in me came out and I may have reacted a tad too intimidating for an 11-year-old.  I was angry.  I thought the world has become slightly better with Mental Illness, but I was wrong.  I spoke, with a seething rage inside my head, sternly to my daughter:

 

“Do not feel that way at all. Do not, for one second, be ashamed of your diagnosis.  So, you have an Anxiety Disorder.  You have no idea what other kids at your school may have.  Most likely a few of your friends have one too.  All that, all that you just said, that is the stigma talking.  You do not have to hide like I did.”

 

She began to cry a little. She knew I was right especially after being such a support and advocate for me.  She nodded her head, apologized, and went upstairs.  I didn’t know if it really sunk in, the words I said until one afternoon she came home from school and was excited to show me a video she was working on in school in one of her classes.  I sat and watched the video and was so enamored and proud of this child.  Here she stood, in the crowded hallways of her school talking about her Anxiety Disorder.  She didn’t care if anyone heard her.  She spoke confidently about coping skills and therapy.  My daughter isn’t hiding anymore.  She’s kicking the stigma to the curb just like her mom.

When You Need To Discuss Sexual Harassment With Your Pre-teen Child

“Mom, I need to tell you something,” my daughter spoke as I started the car after picking her up from the YMCA yesterday, “but I don’t think you are going to like it.”

 

I love sentences that start this way. I had no idea what was going to come out of her mouth next.  Let’s just say I never ran the following as a possible scenario in my head.

 

She proceeded to tell me that a 7th Grade boy on her afternoon bus was going around talking about his two favorite words, thick and moist.  I knew instantly what was coming next as I am my father’s daughter and have always had a dirty mind.  She continued by saying that this boy then proceeded to ask all the girls on the bus if he made them moist.

 

Uh, what?! Did I really just hear that correctly?!

 

My daughter, a wise soul (after all her name means Wise Fairy), was disgusted. Somehow, she knew what he meant at her tender age of eleven.  She scrunched up her face and replied with a huge “No!” when he asked her.  But that response wasn’t enough for this kid.  He then wanted to confirm her answer by asking if he could look to make sure.

 

I was worried what her response would be to this. I have always been straight with her, not sheltering her from the realities of this world.  I was very proud when she said that she told him, “Heck no!”  I am raising her right.

 

I had to digest all this. I knew I would feel disgusted if someone asked me this and I am in my late 30s.  When we got home I was curious to see what her father’s response to this situation would be, hoping that some reaction would be given.  Knowing my husband, I knew I was asking for a bit too much.  He said that this is the age boys get disgusting and that our daughter responded correctly.

 

As the discussion progressed during dinner, more questions arose in me.

 

“Did the bus driver do anything?” My daughter responded with, “No.”

 

Excuse me?!

 

“She didn’t say anything at all?!” My daughter responded, “Nope.  Well, at one point she tried to change the subject, but that didn’t work.”

 

Okay, bus driver, I know this is not really in your job description, but please say something even if just to the school.

 

Did I mention that this bus aside from having the Middle School kids, also has 4th and 5th Graders?

 

I was torn with how to react. So obviously, I posted it on Facebook leaving it to the internet gods to come up with a solid solution.  Waiting for reactions to start pouring in, I pondered this event more and more and became more saddened by it.  Of course, the kids in Middle School are learning about their bodies and how their bodies react hormonally, I can’t prevent that, nor do I want to.  But this, this wording… While he thought he was being cool, it was just feeding the Sexual Harassment frenzy that has snowballed into an avalanche in the United States recently.  It isn’t right, this wording isn’t right.  What this boy did, as many on Facebook agreed, was Sexual Harassment.  These girls aren’t going to know yet to tell him to shut up.  Most are going to shy away from it and pretend it didn’t happen.  Worse yet, is a 4th Grader going to know to tell him no when he wanted to check if they were or weren’t “moist”?

 

I woke up and checked Facebook this morning. I was met with generally the same reaction… this is Sexual Harassment, call the school and the bus company.  While I want to jump at the phone and dial the school’s number, I am undecided what to say.  I feel awkward using the word “moist” (God, what a horrible word) when discussing this with the school authority.  I also have no idea what the child’s name is.  What am I going to say, “Some 7th Grade boy is asking the girls on bus 20 if he makes them moist”?  But, I do not want this to die away.  This is extremely relevant especially at this prepubescent age.  This is the age where girls and boys are learning about what their body can actually do.  They are learning about sex.  They are learning about their body’s reaction to sex.  They are feeling awkward about it.  I mean my daughter still plugs her ears and sings “La, la, la” when I even try to discuss what a menstrual cycle is.  I also know that they are coming upon an age where some of their friends will sadly begin to engage in sex.  All this, all this means, they are coming upon the age of being sexually harassed.

 

It is sad, sad to think that I need to discuss in further detail what Sexual Harassment is to my newly eleven-year-old daughter. It is sad that this boy feels he can talk this way and get away with it, especially with all the recent events (Al Franken, Kevin Spacey, Harvey Weinstein, etc.).  It is sad that now somewhere in my town a parent might have to discuss this with their nine-year-old 4th Grader.  How does one delicately explain it to a mere child?  How do you teach your child this is not right?  There is no required training in this like there is at work.

 

So here I sit, angry, disgusted, saddened and a bit confused wanting to hold on to the little girl that still resides in my daughter, but knowing that in this day and age, she needs to grow up at a younger age than I did.

When You’re More Nervous Than Your Child On The 1st Day Of School

Crowds of kids gathered with their parents at the bus stop snapping photos of their elated children.  Some even took video.  I stood with my daughter giving a hug and kiss on her cheek.  I did this as support, support she didn’t ask for. Why? Because today was the 1st Day of School, the first day in a new school district for her and I was worried.

I was very nervous, bordering on anxious… wondering if she had everything.  I think I was more nervous this year than she was because I can actually remember Junior High (New York’s version of Middle School) and I remember starting Junior High not knowing anyone.  I remembered the fear, the anxiety, the pure terror.  You see, I didn’t go to my zoned Junior High where I would have had friends from my elementary school, I went to a ‘Gifted & Talented’ Junior High for my creative writing abilities.  And although my daughter was starting a new school system as we moved in late spring to give her a better education, unlike myself, she already knew a few people.

I worried about my daughter.  With every new thing she would panic over… What if I can’t open my locker? What if the kids make fun of me? What if I am late to class?… my worry grew.  I only want her to be happy and to succeed.

As the days passed and the 1st Day approached, I repeatedly asked her questions:

“Do you remember how to open your locker?  Tell me.”

“What bus do you take from school to the YMCA in the afternoon?”

And then I started to make blatant statements:

“Don’t forget you will need lunch.”

“You only need a pen or pencil the first day. Why are you bringing so much other stuff?!”

I think I was beginning to drive my daughter batty as she began to roll her eyes at me and sigh.

I just wanted her to be prepared.  Middle School is not Elementary School.  You are given more responsibilities in Middle School.  You have to go to more than one classroom.  You have a set time to get to each class.  You have reports and projects.

And most important… you must figure out who you are sitting with at lunch!

This last item was what was making my daughter more anxious the last few days.  She doesn’t want to hurt anyone.  She was debating between her oldest and dearest friend (they have been friends since they were babies), our neighbor across the way and a friend from her former camp in the city we used to live in that relocated too.  She questioned me repeatedly about this.  I suggested her old camp friend as she would see her bestie on the bus and well, our neighbor lives right across the way from us.

A mass chaos of questions, things to purchase, items on a To-Do list and my brain was foggy (it has been for the last couple of months already).  I couldn’t concentrate to get everything organized, I just couldn’t think.  With that I became irritable.  With the irritability, I grew more anxious and had several anxiety attacks.  It felt like my brain was playing a hyper speed game of Atari’s Pong in my head. But I tried to keep my anxieties from my daughter. We didn’t need her GAD to start.

It was official. I was more nervous than my daughter.

As I stood at the bus stop this morning with her and the gaggle of other kids and parents, I internally told myself this is it.  She is ready and if she forgot something, there is always tomorrow.  Tell your Anxiety that she is fine.  She will make friends. She will open her locker.  She will find her classes. You know she is ready for this and so are you.

Then the bus showed up. I waved to my friend, the bus driver.  I watched her get on and smiled. I walked away feeling calm and content and whispered, “Good luck my love.”

Struggling To Help My Daughter…


My daughter is a bright, caring, empathetic, preteen girl.  Most days she has a smile on her face that melts her mom’s heart.  She is typical preteen, mostly caring about binge-watching shows on Netflix or catching up on her friend’s latest YouTube videos featuring her fave, Beanie Boos.  She does well in school, is friendly to everyone, and is respectful of others.
She also has Generalized Anxiety Disorder (GAD).
When she was diagnosed at age 6, I did everything I could to help her.  I got her into a special group at her school, inquired information from her doctor and read up on anything I could get my hands on.  I have plenty of experience with adult GAD, but I haven’t a clue on what to do for childhood Anxiety.  The school group helped immensely and then she aged out of the program.  She was doing well until a major life event occurred in our household.  We were fostering-to-adopt but had to give this child back to DCF because of my declining mental health.  Her GAD came back full force.  This time we sought out therapy.  While she got help, so did I for my Depression and Anxiety.
In the last 2 ½ years, my daughter has been doing great with only minor hiccups.
Then we decided to move to give her a better education as she starts Middle School, another major life change.
My husband and I do not hide things from her and she knew from the beginning about the move.  She helped us in choosing where we would live (ultimately her input was minor).  We wanted her to embrace this change.  She was excited as she will be in school with her best friend now.  We thought she was handling this well.
And then sleep disturbances set in.  
My daughter has always been a good sleeper; I have never experience this before even with her past episodes of GAD.  As the moving date approaches, her sleep disturbances have become full fledge episodes of Insomnia and I, as her mother, feel completely helpless.  Here I am, a woman who has struggled with Depression and Anxiety for most of my life and I can’t help her.  For me, the solution comes in the form of medication that I take nightly.  For her, at age 10, there is no medicinal help.  At first we tried simple solutions by telling her to read, it will tire her eyes.  That didn’t work.  
As night 3 was approaching, I became extremely concerned.  I could vividly remember what I felt like and how I reacted to night 4 of Insomnia for me.  I remember the tears and the strong desire to sleep.  I remember the immense amount of thoughts that bounced in and out of my mind.  I remember the extreme irritation and delusional thinking I had during the day.  I was desperate to give my child relief.  
I suggested she use my weighted blanket.  She refused.
I suggested mindfulness meditation.  She refused. 
I suggested my Therapist’s 4-square breathing technique (breathe in for 4 seconds, hold for 4 seconds, breathe out for 4 seconds, repeat 4 times) which has worked for me a few times.  She was hesitant but decided to give it a shot.  It didn’t work.
Night 4 brought on the only pseudo-medicinal thing I could try with her… Melatonin.  I cut my 3mg pill in half.  Nope, still didn’t work.  She was in tears.  She just wanted to sleep and I completely understood this all too well.  I explained that she needed to distract herself, try not to just lay in bed.  I suggested reading, writing, journaling, drawing, coloring and lastly, watching stuff on her Kindle (which I set to the night mode that turns off the harming blue light).  She slept only 7 hours that night, barely enough for an adult.
Last night, night 5, I finally convinced her to use my weighted blanket.  I thought we may have found the solution as all was quiet.  Then I heard her come downstairs at 11pm.  After about 15 minutes, she returned to her room.  This morning she said that she sat crying in her room and eventually fell asleep around midnight.  She woke up at 6:10am.  6 hours of sleep.
I don’t know what to do.  She is declining rapidly.  The recommended amount of sleep for a child her age is 9-12 hours.  She has not had anywhere close to this in five days.  My sleep is becoming disturbed worrying about her.  I do not know how to help her anymore.  I am struggling as I feel the sense of blame coming back… she is like this because of me.  My GAD worries that she will never sleep again, always jumping to the worst conclusion.  I cry for her.  I blame myself for her struggles with this illness.  I am pondering therapy again, but that isn’t going to fix her problem quickly.  How can I help my daughter?  

What My Daughter Knows

My daughter knows I hated her just two weeks after she was born. Pure hatred, where using the actual word ‘hate’ is valid and not taboo. She knows I wanted to leave her and never ever see her again. She knows I wanted to turn back time and never have her, completely obliterate her existence.

My daughter knows what suicide is. She learned this at age 8 because she overheard something on the radio. She knows that I have thought about committing suicide a handful of times and that one of those times I came very close to slitting my wrist with a case cutter I stole from work (and still have). She knows I was a teenager then, almost 18, a legal adult, only 8 years older than she is now. She knows that these ideations have blown into my mind like a breeze and have quickly left several times in the last twenty years.

My daughter knows I am sick. She has seen me at my worst, a vision I never wanted her to lay eyes on. She has seen me shaking, rocking back and forth, nails digging into my head spewing delusions out of my mouth left and right. She has seen the tears, witnessed the dry-heaving runs to the toilet, heard my self-loathing.

My daughter knows I have been hospitalized, twice. She accompanied my parents this latest time when they visited me, being forced to stay in the cafeteria with my father because she was deemed ‘too young’ for the short term psychiatric ward. The hospital feared the patients there would hurt or scare her by saying or doing something. This means they feared I would hurt or scare her too. She knows the emotional pain one feels when the only communication we had was through a phone… a phone that would cut you off if you moved wrong, a phone so desperate in need of replacement. She understands that the hospital is my safe place, when our home is unable to be just that.

My daughter knows she is an Only child because of me. She knows I was barely able to raise her in the beginning due to Severe Postpartum Depression and Anxiety. She knows at times I have been unable to care for her in the episodes of Major Depressive Disorder since. She knows that she lost her little brother, my beloved former foster son, because my illnesses prevented me from being able to function, let alone parent. I became a third child for my husband then, a childlike creature in an adult body that my daughter started to take care of, becoming a Mommy to her own mother.

What I didn’t expect for  this wonderful, kind, and loving child to learn was acceptance. Every time I had to explain these things, every time I hurt her, I expected anger and rage in return. I expected her to ignore me, shout “I hate you Mommy”, rotating the knife deeper into my back.  I expected extreme tears over losing her brother, many more than she shed (and she cried quite a bit).

Instead, she shocked me by becoming my protector of sorts, a role I never asked her to take and tell her now she can relinquish.  She truly cares if something will affect me, triggering me back to those dark dismal days.  She has true compassion and empathy, two traits I am happy she learned, although I wish she learned them with something other than me as the subject.  She is the Wise Fairy that her name, Sophia Faye, connotes.

There are so many things she has had to learn at the tender age of 8, 9 and now 10.  These things I would have liked to have postponed.  I have been called out by a select few saying she was too young for these strong topics.  Yes, I know.  But, I have to say, if by telling her about being mentally ill, suicidal & hospitalized has made her into the awesome kid that she is today, I am happy she knows.  I am happy she knows, because she won’t have to live in the shame and stigma of it if it happens to her.  She knows she has a loving mother who has been through hell and back that can help her.  And she knows that although at one point I hated her, wanting to leave, I couldn’t bare to live without her now.  She is my heart, my strength, my love, my Sophia Faye.

What I Want My Daughter To Know On Her 10th Birthday 

My Baby Girl,

Today you turn 10, a decade old.  As I look at you, I see the baby face that I gave birth to and admire the preteen beauty you are now.  I am not sure when it actually happened, when you got to this point that toys were no longer an “in” thing for you, that make-up tutorials and Minecraft tutorials were now cool.  I am not sure when you decided to stop playing with My Little Pony, Barbie, and American Girl Dolls.  Ten years, they just flew by.  As I reflect on these stages of infancy and young childhood that I will never experience with you again, I want you to know a few things and keep them in your mind as you get older:
Stay Kind – Kindness is everything.  You really do need to treat people how you would like to be treated.  As you make fun of someone for the outfit they are wearing (and you will), remember that they are owning their style just like you own yours.  Remember they are human too and no one deserves to be made fun of.  Being kind opens up doors to future opportunities.  No one wants to hire a rude person.
Be Your Unique Self – You will fall into peer pressure.  I have not noticed anyone who hasn’t at one point in time.  Please remember that you are the only you there will ever be.  Exploit that.  Show your style and your personality.  Your friends like you because of who you are.  If they are asking you to change or to do something you don’t want to do and threaten your friendship because of it, then they were never your friends to begin with.  
Hold On To Your Imagination – Tether this one to your heart.  As we age and become adults, our imaginations tend to dwindle.  When I was younger, I was an avid story and poetry writer.  Then adulthood kicked in… work, bills, getting married, having a child… I lost a piece of me.  I lost my imagination.  It took falling into a black abyss of depression and anxiety to get that back and at this age, it isn’t nearly as strong as it was.  Crazy glue your creativeness to yourself.  Don’t ever lose that.  It is what makes life interesting.
Keep Dreaming – Always aim to achieve your dreams and goals.  It may not be a quick process but never decide to let go.  You have seen me achieve my dream of becoming a published writer with being a contributor to two published collections.  You see me currently writing my own book… a book that has been in the process for years but I am not giving up.  Do not let others tell you to quit dreaming.  They are not living within you.  You are capable of anything you put your mind to.
Challenge Yourself – Do not take the easy way out on everything you do.  Strive to be as good as you can be.  Try to read those novels in high school and bypass the Cliff Notes, you will be surprised at all that is in the actual novel.  You do not need to strive to be valedictorian, just try to be the best YOU can be.  Challenge yourself by drawing more, writing more, reading just one more page.  You won’t regret it.
Loyalty Is A Blessing And A Curse – Always try to remain loyal to your friends and family, the ones that have your back, the ones that love you “to infinity and beyond”.  Loyalty is a tremendous gift but, it can backfire on you.  Just be aware.  You may put out way more than you will receive in certain relationships. 

 
Remember Empathy – Empaths are rare.  To truly be empathetic to a person is to “walk in their shoes”.  Everyone is going through something.  It could be a physical illness such as cancer, a mental illness  such as depression, neglect, prejudice, etc.  No one, I mean, no one’s life is easy even if it seems like it.  I am glad that I passed on this gift of empathy to you.  Keep using it in all situations, but try hard to not let it stick with you for long periods of time.  Once you feel empathy for a person or a group of people, acknowledge it, digest it, and then do not dwell on it.  It can take over your mind and cause you depression and grief.

Not All Friendships Last – Friendships can end due to many reasons.  Sometimes you may have said or done something and sometimes a friend may have offended you.  Honestly, most friendships that end is just from the simple fact that friends can grow apart.  Schedules get busy. Common things get sparse.  It happens, and baby, it hurts.  There will be a grieving process to mourn the end of a friendship.  You’ll go through the stages of denial, disbelief, depression… and eventually, acceptance.  What’s important is to realize that they were in your life for a reason.  It may have been the extra shoulder you needed, or the ear you lent them.  Understand that although you feel like it ended because of you, it most likely didn’t. With these friendship deaths, there are strengths.  Friends you’ve had for years, decades, who are there for you. Friends you may not see or speak to often but when you do, it’s like you were never apart. Hold on to them.
Common Sense Is Just As Important As Book Smarts – Always aim to be the best student you can be but that is in two fields in life, school, and common sense.  Listen to your instincts.  Sometimes common sense matters more than what you may have learned in class.
Love Unconditionally – Always let love in.  It can be in the form of your father and I loving you, you loving your friends and them loving you back, finding your future spouse, love for your future children and love for a pet.  If you have every really processed movies, you will realize love conquers all and it does.  Love is what saved Harry from Voldemort.  Love is what let Anna and Elsa take back their kingdom.  Love is what brings Darth Vader back from the Dark Side to the Jedis.  Love is what makes us live and want to live.  There is always someone out there that loves you.
I know I have told you most of these things before, but I want you to understand all of them.  You are getting to a point in your life where you will not listen to me anymore (or at least for a few years).  You will think you know everything and Mommy and Daddy know nothing.  I have been there.  Your father has been there too.  But you know what?  After those years of being “above all” you will come to treasure everything your parents told you.  You will read this letter and know exactly where Mommy was coming from.  Please process these now and keep them with you.  Know that I see you, I see the strong, silly, sassy, smart girl you are.  I see your beauty, inside and out.  I can see what you are capable of.
You are a beautiful and unique young lady.  You are you.
Love, Mommy