When a Nobody Becomes A Somebody

A Book Review of Nobody by Sarah Fader and Ari Fader-Van Luyn

Have you ever felt alone? Different? Invisible?

I have most of my life. I knew from a young age that I wasn’t like other kids. I could not pinpoint what made me different with the exception to my extreme pessimism. It wasn’t until I was diagnosed with major depressive disorder at 14 that I became aware of why I was different. Because of this diagnosis and the fact that this was the mid-1990s, I was told by my parents to never bring it up. At the time they didn’t know any better since the stigma surrounding mental illness was so much worse than it is today. This just isolated me more. Aside from feeling different, I felt alone. I thought I was alone with my suffering, that no one else felt like I did.

Through the years, I have gone back and forth with depression and now anxiety to a point that I will not hide anymore. It is just too hard to keep it all in. I said screw it to the stigma and have become a huge advocate (and activist) for mental health. I had to, especially when my own child was diagnosed with an anxiety disorder at age 6 that was present for two years prior.

She felt alone and scared. She didn’t understand what was going on. She was a Nobody.

What is a Nobody? This is a Nobody:

Nobody_Cover_Sarah_Fader

And that is Nobody’s dog, Nobody. And they live Nowhere.

This is a children’s picture book written by Sarah Fader (Founder of Stigma Fighters and Eliezer Tristan Publishing) and her young preteen son, Ari. Like my daughter, Ari feels like a Nobody because of the struggles he has been through. Both have felt very “ERRRRGH” and have the need to not feel like a Nobody anymore.

How I wish this book was around when my daughter was diagnosed. It would have let her know that although she is different, she is not invisible and alone. She is not a Nobody. She is a Somebody.

Somebody, that is a human child that finds the Nobodys and tells them that they are important too. That they are seen. That makes the Nobodys feel special. That makes the Nobodys feel like Somebodys. I would love to tell you how it ends, but that would give away the whole story.

This is a great book to read to your young child that feels different, that feels like they do not fit in. It lets them know they are not alone and that there is always a Somebody out there for them.

Nobody is beautifully illustrated by Shari J. Ryan.

Okay, So Where Can I Find Nobody?

You can find Nobody by Sarah Fader and Ari Fader-Van Luyn at:

Eliezer Tristan Publishing: Nobody

Amazon: Nobody

Teen Suicide & Social Media

Over the weekend, a local 16-year-old girl took her life. A permanent solution to probably years of bullying.

And the bully laughed. Instead of stopping her, she watched her jump off the top deck of the mall parking garage. Then, she took a photo and posted it on social media warning people to stay away from the mall. If that wasn’t bad enough, she expressed joy that this young lady was dead and even remarked, “Rest in peace, bitch.”

It’s time we discussed teen suicide and the ramifications of it with the effects of social media.

When I was a senior in high school, a freshman took her life by hanging herself. We were all sad and confused. Even myself although I had been diagnosed with major depressive disorder four years earlier. I was still not fully aware of what goes through a person’s mind to think ending their life is the only way out. That quickly changed when I found myself sitting on the floor of my bedroom with a case cutter to my wrist debating slicing through a major artery. The numbness, the self-loathing, that feeling that the world would be better off without you in it. I understood then.

But I was in high school in the late 1990s… a generation without social media.

Now, I have a 12-year-old daughter. She is only 2 years shy of my first depression diagnosis and 4 years shy of the young woman who committed suicide. I constantly talk to her. She has known about suicide since she was eight because I was unwell and she was old enough to see that. Our discussion can be found in my post “Mommy Is Not Going To Kill Herself“. After learning of this teenager’s demise, I sat my daughter down for another discussion. I didn’t know if the school would bring it up, but I wanted her to know. I told her everything I knew. I told her about the young woman’s suicide and then I told her about the bully.

Her reaction was pretty much the same as mine as we are both highly emotionally and compassionate people. We were heartbroken upon hearing of this girl’s death. We were livid with the bully’s reaction.

How could someone be happy that another person committed suicide?! How can you express it on Snapchat and be okay with that?! How could you then degrade her by calling her a bitch?! I am sure like most teens she thought nothing would happen to her, that she is invincible. The local paper has pretty much kept the story hush-hush as these are minors and the police are still investigating.

The weird thing about all this… I had just watch Friday night’s Dateline concerning the Michelle Carter case. Michelle Carter is in prison for a couple of years because she coaxed her then boyfriend, Conrad Roy, to take his life. They were teens at the time. On the day of his death, he was having second thoughts and left his truck (where he would later die from carbon monoxide poisoning). Michelle told him to get back in and just do it. It is known as the “texting suicide case”.

This recent local event is somewhat similar. It involves teens and cell phones. I believe the Carter case has set a precedent. Will this local bully be charged with anything related to what she put on Snapchat? Who knows. There may be way more concerning the young woman and her bully on all forms of social media.

And that is the issue, isn’t it?! Social media. We can lay it all out there. Say anything we want and hide behind the cell phone or computer screen. The problem is, whatever you say on social media is there forever and it can come back to hurt you days or years later. But once again, teens think they are invincible. It’s time we told them they aren’t.

My heart breaks for the family and friends of this young woman. I am not sure what could have been done. Her parents lost a child. All these hopes and dreams they must have had for her, taken away by a teenage bully. The pain they must be going through. Then I think of the parents of the bully and the shitstorm that is coming their way. Are they in denial… my kid couldn’t do that, she is a perfect angel and so kind… or have they come to the realization that no matter how good of a parent they are, some kids can be mean, downright cruel and immune to others feelings, almost sociopathic. I hurt for those parents as well.

For  now, I weep internally (because of Lexapro I can’t externally). I cry for the young lady, her family and friends and for the parents of the bully. I am an empathetic creature and want to feel their pain. I will continue to talk with my daughter because I do not want her to become the bully or the victim.

It is Kindness Week at her middle school this week. Kind of fitting with recent events. Today is yellow or ‘joy’ day. I hope the school does mention this teenager’s suicide and the bulling. These kids are not little innocent beings anymore. They need to know because the person who is sitting next to them could be the one contemplating taking their life or the one causing pain and suffering to someone else. They need to know that death is permanent. They need to know that rude comments leave scars. They need to know the damage that can be done.

Teen suicide is real. If you know someone who is in trouble please push them to get help. If they are not willing, stand up and speak for them.2417122_1280x720

The Sun Will Shine… Poetry

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The Sun Will Shine

Rocking chair moves, dark room,
Blank stare, melancholy doom,
Holding babe, lanky arms,
Tear falling, first do no harm,
Rock forth, rock back,
Losing grip, feeling slack,
Beautiful girl, pudgy cheeks,
Trying to hold close, feeling so weak,
Told you’ll be okay, trying to believe,
Closing your eyes, just feeling grief,
Slipping fingers, baby girl falling,
Quickly catching her, still bawling,
Fixated spot, empty wall,
A big void, emotional overhaul,
Losing the battle, giving up,
Hating the child, yet still in love,
Months gone, still feel alone,
Trying to fane happiness, trying to feel whole,
Body raped, pill after pill,
Combinations played, climbing that hill,
Happy eyes stare, filled of ocean blue,
Trying to love, holding and hugging you,
Dormant smiles, buried deep,
Hiding my pain, inside I weep,
Hour glass runs out, flipped once again,
Feeling less zombie, gaining control of my head,
Hearing you laugh, seeing you crawl,
Suddenly amazed, Inhaling it all,
The sun is shining,” I say holding you,
Let’s go out and observe,” just us two,
We both stare in awe, you at the sky,
Me taking deep breaths, pushing your first year to the side,
The rocking chair still sits, alone and bare,
Room still darkens, my mind is not there,
Now cradling you, swaying side to side,
I’ll never leave you, my baby girl, my pride.
– Stephanie Paige, 2016
This poem was originally published on PostpartumProgress.com as a guest post. It can be found here: http://www.postpartumprogress.com/sun-will-shine-poem-postpartum-depression
I have to say, I love to write poetry and have since I was a preteen, my daughter’s age. The odd thing about this poem is it rhymes.  I usually never rhyme in my poetry.  I also have to admit, that my best poetry occurs when I am struggling with depression. Since I am on that roller coaster ride once again, I have been writing a lot of poetry lately and expect to share more in upcoming posts.

Living With Someone Who Is Mentally Ill: Interview with My Daughter

My daughter has seen it all. From her oceanic blue eyes in her cherub baby face to now, almost 12 years later. She is a remarkable child who has not only witnessed her mother’s hysterics (& panic attacks, drastic weight loss and days of not getting out of bed) but also her own diagnosis of Generalized Anxiety Disorder. My daughter, given the name Sophia Faye at birth, is the epitome of the meaning… “Wise Fairy”. Sophia is an old soul and understands so much for such a young person. Many words can be used to describe her but at the top of the list are definitely compassionate, empathetic, caring and loving. There are days I may miss her little toddling body and cheeky grins but I love watching her blossom into the amazing young lady she is today.

When I decided to do this interview series, I knew I had to interview her. I have not hid much from her. In fact 3 years ago I was so foregone I couldn’t. She learned about suicide at the tender age of 8 and questioned me often about it. She knows I grew to hate her as a newborn. I’ve always explained things to her in an age appropriate manner and often worried about her reactions but she has always listened, digested and never ever judged. I am amazed by her and couldn’t of asked for a better child.

Sophia’s Interview

Lounging in her preteen abode full of textured pillows and dozens of Stitch stuffed animals early in the evening, we both relaxed on her bed. There were many giggles beforehand as she pictured this interview as a video recording and not just a vocal recording. She was a little nervous, as was I, and we both tend to laugh a lot when we are nervous:

Me: How did you feel when I told you I grew to hate you when you were a baby?

Sophia: Fine.

Me: How come you were okay with it?

Sophia: Because I knew you didn’t mean it.

Concerning 3 years ago

Me: What did you feel and think when I left the house 3 years ago to stay with Bubbe & Grandpa (my parents) because Tyler (former foster son) was triggering me?

Sophia: I don’t remember that.

Me: It was only 3 years ago!

Sophia: Didn’t I come with you?

Me: You did.

Sophia: It was when he left?

Me: Yes.

Sophia: Oh, I mean, I was… I didn’t even notice anything was wrong with you. Like, I… I don’t really know. I felt fine because I didn’t know you were triggered.

Me: I left the house because I couldn’t stay there.

Sophia: But wasn’t I there too?

Me: I don’t think you came the first night.

Sophia: Oh. I don’t remember. I’m getting old!

Me (after rolling my eyes at that last statement): How did you feel when I admitted myself into the hospital?

Sophia: Scared.

Me: Did you know why I was there?

Sophia: No, I’m not sure. No.

Me: What did you think when you couldn’t visit me in the hospital and had to stay in the cafeteria with Grandpa?

Sophia: I wasn’t happy about it. I mean, I wanted to see you.

Me: You weren’t allowed to see me because they were worried about what the other people might say to you, what you might see.

Sophia: Oh, okay.

Me: Were you scared when I was released from the hospital?

Sophia: No, because I was happy you were going to leave and come home.

Me: You’ve been protecting me since the hospital stay. How come?

Sophia: Because I don’t want you to go back to the hospital.

GAD, PPD, Depression, & Suicide

Me: Do you blame me for your Generalized Anxiety Disorder and it is okay if you do?

Sophia: No.

Me: Do you blame anyone for it?

Sophia: No. Why would I?

Me: Do you wish you were ‘normal’?

Sophia: Sometimes.

Me: If you didn’t worry about the things you worry about?

Sophia: Sometimes, because sometimes it is good to worry.

Me: Do you fear you’ll have Postpartum Depression and Anxiety because I had it?

Sophia: Sometimes.

Me: Do you worry or fear you’ll have a Depressive Disorder because I have one?

Sophia: I don’t usually think about it. I guess, but that is only when I think about it.

Me: Do you know when I was first diagnosed (with Depression)?

Sophia: You were 14.

Me: And how old are you?

Sophia: I am 11.

Me: So you are close to that age.

Sophia: Yeah.

Me: That’s why I watch you a lot.

Sophia: That’s not creepy.

Me: Not in that sense Sophia. I’m not stalking you… Are you worried I will commit suicide?

Sophia: Very much.

Me: How come?

Sophia: You told me how you took that can cutter thing (a case cutter) and almost cut your hand off (almost slit my wrist).

Me: I was 18 then.

Sophia: So?

Me: That was 20 years ago.

Sophia: You also said that if you go off of medicine you’re probably going to want to commit suicide the next time you have an episode (of Major Depressive Disorder).

Me: Are you worried I will hurt myself?

Sophia: Yeah.

Me: Do you think there will be a next time?

Sophia: Yes, just because of events that can happen in the future.

Me: Like what?

Sophia: Like Bubbe & Grandpa dying or like the kitties dying and stuff.

Me: Do you think because of what I have been through that I am too overprotective with you about Mental Illness?

Sophia: Sometimes. There is no reason you should be.

Me: Do you understand why I am?

Sophia: Yeah. Because you don’t want me to get Depression and stuff.

Stigma & Advocacy

Me: What have I told you about stigma?

Sophia: What does stigma mean again?

Me: Hard to define but how people think the Mentally Ill are a danger to our society, that you should be hush-hush about it because people may not hire you, people may not want to be your friend, people don’t believe it is real.

Sophia: You’ve told me.

Me: And what do you think about that?

Sophia: I mean if that’s what they think, that’s what they think.

Me: Because you know that one of your grandparents thinks that way.

Sophia: Well, yeah, but…

Me: How do you feel knowing that you have Generalized Anxiety Disorder and you have a grandparent that doesn’t believe it exists?

Sophia: Well, that’s what he can think.

Me: Do you understand why I advocate for this?

Sophia: What does that mean, advocate?

Me: Why I share my story. Why I try to teach others.

Sophia: Yes.

Me: Do you see yourself doing that?

Sophia: I don’t know.

Thoughts on Me, Her Mom

Me: Do you think I am a bad mother?

Sophia: No. Not at all. Why would I think you were?

Me: Do you ever wish you had a mother that wasn’t like this?

Sophia: No.

Me: Did you ever think I was a bad mother?

Sophia: No.

Me: How do you characterize your mother?

Sophia: Worried, anxious, fun, caring, loving, sometimes depressed.

Me: Do you always related Mental Illness stuff to your mom?

Sophia: Like different things other than Postpartum?

Me: Well I have had Depression since I was 14. There have been others thrown in there.

Sophia: When I think of Depression I don’t think of you as ‘Oh, she’s depressed’, I think ‘she is still alive and she is strong’.

Me: You see me as strong and a fighter?

Sophia: Yeah.

Me: What traits do you hope you get from me or do you see you already have gotten?

Sophia: I want to get your determination and your strength and sometimes your empathy because a lot of times empathy is good and I want your mental strength.

Me: Any last comments on me, your mother?

Sophia: I love her.

Me: Would you want any other mother besides me?

Sophia: No.

Me: How much do you love me?

Sophia: To infinity and beyond!

I am truly grateful for this kid!

Living With Someone Who Is Mentally Ill: Interview with My Husband

I was approached by a friend of mine who offered up the suggestion on doing an interview series with family members on what their thoughts and feelings were concerning my Mental Illnesses.  I have to admit, I had been toying with this idea for a long time and at this request, felt it was the time to actually commit to the series.

Since it is May and Mental Health Awareness Month, I knew that I wanted to publish these now.  As much as we (those of us diagnosed) feel and think about when we are deep in the depths of Depression, Anxiety, Bipolar Disorder, Schizophrenia, Borderline Personality Disorder, etc., what do those close to us feel?  Do they feel as hopeless? Do they feel frustrated with us? Are they so angry they are wondering why they are with us?

I interviewed my husband this past weekend (my daughter and parents interviews will follow).  This is a man who has been with me for almost 22 years, since we were teenagers.  He has witnessed 5 out of my 6 episodes of Major Depressive Disorder.  He has been through my hospitalizations, my self-loathing, my hysterical thoughts.  And he stays.  A lot of what I asked him, I knew the answers to (I mean, hey, we’ve been together for over 2 decades!), but he did shock me with a few.

I present below my interview with my loving husband, Jimmy.

The Interview

Picture it, Master Bedroom, a late Saturday afternoon in May in New England.  I greet my husband and thank him for participating.  He nods.  He is not a wordy person which is shocking by some of his answers:

S. Paige:  What were your 1st thoughts and feelings after witnessing my episode of MDD in college where I slammed doors and pushed you out?

Jimmy:  I felt I had done something wrong to make you feel, like, the way you were feeling.

S. Paige:  Were you angry? Were you upset?

Jimmy: Defeated.

S. Paige:  What made you call my parents then?

Jimmy: I don’t remember doing that.  (He did in fact call my parents and filled them in on what was going on with me.  I received a phone call from my therapist that evening and then the campus psychologist the next day.)

Episode 4: Postpartum Depression & Anxiety

S. Paige: Okay, let’s go to something more recent. What did you think and feel when you got the phone call that I was at the hospital after Sophia was born (for severe postpartum depression & anxiety)?

Jimmy: … I don’t know.  I didn’t know what to think or feel.  I didn’t feel.

S. Paige: Were you worried? Were you wondering what the heck was wrong?

Jimmy: No.  I just thought that is what happened (after childbirth).  You had a hormone crash.  You had baby blues.  I didn’t realize you weren’t sleeping well.  I didn’t realize it was a thing.

S. Paige:  Did you realize I was vomiting all the time?

Jimmy:  No, I knew you were taking Ensure.

S. Paige:  Were you and I living in the same house at that time?!  You went to therapy with me.  You went to the psychiatrist with me.  You weren’t concerned at all?

Jimmy:  I don’t recall going to the therapist.

S. Paige:  This is proving to be a really valuable interview (sarcasm)

Jimmy:  I blocked these bad memories out.

S. Paige:  How were those 12 days when I was in short-term psych (I admitted myself exactly 1 month after our daughter was born)?

Jimmy:  Non stop.  I didn’t have time for, like, myself.  I was always visiting you or taking care of Sophia or with your parents or at work.  I had no time for me.

S. Paige:  Did that strain you?

Jimmy:  I’ll never eat at a KFC ever again.

S. Paige: (perplexed) Why? What does KFC have to do with this?

Jimmy:  Because that is where I would eat from the train station on the way to the hospital.  The KFC on North Street.  And I just can’t eat at a KFC ever again because I link the two together.

S. Paige: So it is a trigger?

Jimmy:  Yes.

S. Paige:  How were you able to continue with that schedule?

Jimmy:  Because I knew it would end eventually.  There was light at the end of the tunnel.  I know you didn’t see the light, but I could.

S. Paige:  I feel guilty for that (putting him in this position).  Do you know that?

Jimmy:  It’s what I am here for.  I’m the husband.

Episode 6: My 2nd Hospitalization / A Next Time?

S. Paige:  How did you feel when I went back to the hospital?

Jimmy:  I had gotten used to it.  It’s just like a part of you.  Every decade or so, you’re going to have to spend a couple of weeks in the hospital.  I don’t know.  I’ve just accepted it.

S. Paige:  Are you okay with that?

Jimmy:  Okay-ish.  I would rather you not have to do that.  But, it is part of who you are.  That every time some major event occurs in your life and for whatever reason you can’t adjust to the change it is always a possibility that you could end up in the hospital for a week or two.

S. Paige:  Do you worry about a next time?

Jimmy:  No.

S. Paige:  Do you think there will be a next time?

Jimmy:  Probably.

S. Paige:  Do you ever fear I won’t recover?

Jimmy:  Depends on your definition of recover.  So like hopped up on mega does of anti-psychotics for your life type never recover?

S. Paige:  Yes.

Jimmy:  Yeah, that’s a concern.

S. Paige:  What would you do?

Jimmy:  I don’t know.  I don’t want to think about it.

S. Paige:  Do you fear I will take my own life?

Jimmy:  No.

S. Paige:  How are you so sure?

Jimmy:  I… don’t know.  I’m not so sure, but I am pretty sure.

Stigma

S. Paige:  How did you feel about having your wife in the psych ward?  Did that seem normal to you?  Seem weird?  Did stigma play into it?

Jimmy:  No.  Because… its… its… maybe for the people of the older generation than us.  I might not tell them directly that my wife is a ‘nut job’ and she’s spent time in the psych ward but people our generation and younger are much more accepting of medication and therapy and needing inpatient stuff but I might not be as open to the older generation.

S. Paige:  Taking the older generation into account, how do you feel when your father says…

Jimmy: (cut me off) He’s an idiot.

S. Paige:  I didn’t even get the question out.

Jimmy:  It doesn’t matter.  But he’s my father and its not like I can say anything bad to him because he’s a Catholic father and because you haven’t grown up in a Catholic family you don’t know.

S. Paige:  No, I don’t know.  But you have a wife and daughter with Mental Illness diagnoses’.

Jimmy:  I’m not going to change him so I just accept the fact that he’s and idiot and ignore him as best as I can.

Our Daughter, Sophia

S. Paige:  As a parent, do you worry that she’ll be like me?

Jimmy:  I worry she is going to be like me.

S. Paige:  Why, what’s wrong with you?

Jimmy:  I’m an antisocial, geeky, anxiety riddled ‘nutto’.

S. Paige:  You do not have a disorder.  You have moments of anxiety.  She has one already.  With teenage years and hormones do you worry she’ll follow in my footsteps?

Jimmy:  No, you’re still alive and you’re 38.  She’ll make it through.  It’s part of who you are, it is part of who she is.  I wouldn’t want to change either of you two.

S. Paige:  Do you think because of what I went through, we’re better equipped to deal with Sophia if she does fall victim to depression?  I know we have definitely done better dealing with her anxiety.

Jimmy:  I just hope we’re not biased.

S. Paige: That concerns me.

Jimmy:  I mean you’re super biased towards never going on medication.

(FYI, I am medicated and fine with it)

S. Paige:  It’s not that I’m biased, it’s just…

Jimmy:  … like it’s a sign you’re headed down that slope.

S. Paige:  Yeah.

Jimmy:  And I’m just like yeah, whatever, if it makes the slope less steep than who cares?!

Changing Me

S. Paige:  Did you ever just want to ‘slap’ the anxiety and depression out of me?

Jimmy:  No.

S. Paige:  Do you wish I didn’t have either one?

Jimmy:  Interesting question.  It’s hard to answer.  Because it’s part of you and I love you.  But would not having it make you better or different?

S. Paige:  Do you think we would have had more children if I didn’t have anxiety & depression?

Jimmy: Yes.

S. Paige:  How do you feel overall with this (pointing to self)?

Jimmy:  It’s interesting.  What’s the point of living life if it isn’t interesting?!

S. Paige:  Why do you stay?  Times I’ve said go, leave me, take Sophia.  I’m a disaster, you deserve more.

Jimmy:  I need you.

 

And lastly…

 

S. Paige:  What would you say to a husband/father who was going through this with his wife or child for the first time?

Jimmy:  Persevere, because there is light at the end of the tunnel and it isn’t an oncoming train.  It is really the end of the tunnel.  It will get better.

When All You Can Do Is Blame Yourself For Your Daughter’s Diagnosis

I tried to hold my tears back as I stared into my daughter’s oceanic blue eyes.  I could feel them welling up, feel the moisture increasing.

Not here, not now, not in public, Stephanie.

But, to be cliché, the dam was about to break.  A tear or two escaped.  My daughter was concerned and relayed this to her father on the phone.  She handed my cellphone back to me and my husband proceeded to ask, “Are you okay?”  No, no I wasn’t okay, but do I tell him that?  The silence was broken as he asked again.  I told him the truth because even if I lied and told him I was okay, he knew I wasn’t.

I am about to cry,” I uttered quietly so the other patrons could not hear me.  My daughter and I were waiting for our dinner order to be ready at our favorite sandwich shop in town.  It was last Friday evening, the start of the weekend, and my husband’s Friday to geek out and play Magic.  He wanted to stay home with me.  I told him no, I didn’t want him to blame me for not being able to play (even though he wouldn’t, it was all in my head).  I told him this knowing full well that I wanted his support but feeling I didn’t deserve it.

Our food order was ready and we went home passing my husband’s car on the way.  When we pulled into the garage, my tears flowed like a high pressure hose.  My daughter wanted to know what was wrong although she could somewhat guess as she has been a witness to me, her mother, for the last eleven years.

“It’s my fault, it’s all my fault.”  My lamentation increasing as these words escaped my mouth.

“What is your fault, Mommy?”

“That you are the way you are.  It is my fault.”

My daughter has been diagnosed with Generalized Anxiety Disorder since she was 6 and has struggled off and on with it over the last 5 years.  This year has been extremely hard on her and because of it, hard on me.  She has been in therapy since the fall and because of some reactions she has had during her anxiety attacks the past month, it has recently been suggested that she get evaluated by a psychiatrist.

When the recommendation was first made to me by her therapist, I have to say I was a bit shocked.  I guess I never thought that her Anxiety warranted a psychiatric evaluation.  After a few hours, I have to admit the stigma against Mental Illness set in; her seeing a psychiatrist would really mark her as someone who is mentally ill.  I hurt for her.  My husband and I discussed the evaluation with her.  She has learned about the stigma, has learned to stand up to it (from her Mom of course).  But even this, having the word “psychiatrist” associated with her name, caused her to want to hide.  She instantly thought she would be medicated.  Eventually, she became okay with the evaluation that is set to be done in another week and a half.

All this got to me.  It pulled at my heart, tore holes, ate away at it.  The biggest fear I had when becoming a parent is that I would pass on my Depression and Anxiety to her and I have.  Her being in therapy never bothered me.  I am a firm believer that most people would benefit from therapy regardless of a Mental Illness diagnosis.  It was the mention of “psychiatrist”.  To me, like my daughter, I associate “psychiatrist” with “medication”.  Throw in the word “evaluation” and I was losing it.  I held back my emotions for the sake of my daughter, but I knew eventually they would become very visible.

I spoke with my therapist about it.  He told me it wasn’t my fault.  I said, “How?  How is it not my fault?!  She suffers the way I do.  I never wanted her to and now she is.  It’s only going to get worse.”  He logically said that this is something I did not give her on purpose.  There was no way of knowing whether she would be Mentally Ill or not.

“But I gave it to her.  It is my genetics that did this.  She is becoming me.”

No matter how many people tell me it is not my fault (heck, even my intelligent daughter tells me), I still cannot stop blaming myself.  I can’t kick this feeling.  She is already experiencing more than I ever did at her age.  I mean, I wasn’t even diagnosed until 14 and here she is at 11 with 5 years of Anxiety under belt.  Maybe I am transferring myself onto her to an extent, already predicting more suffering in her future getting worse and worse as she ages like it has for me.  No parent wants to see their child endure pain and illness.  In this case, I didn’t want her to endure the thoughts that I have felt, the fear I have felt, the hopelessness that I have felt.  I didn’t want her holding a case cutter to her wrist.  I didn’t want her desiring to stick something in her brain to end the constant negative thinking.

And yet it is beginning.  The fear is already inside of her.  And it was all my fault.  How could I, someone who has battled Depression and Anxiety for over 24 years, not feel blame?  More importantly, how can I stop feeling blame?

Teaching My Daughter To Rise Above The Stigma Of Mental Illness

My daughter has seen me. She has seen me throughout her eleven years of life.  She has seen me lose touch with reality several times, seen me cry uncontrollably many times, seen me at a handful of Psychiatric and Therapy appointments.  She has even seen me become hospitalized.  Throughout all of this, she has stood by my side supporting me any way a preteen can.  She will get me my medication and water when I have an anxiety attack.  She will tell me she doesn’t want any other Mommy when I say she deserves better.  She fights the stigma behind Mental Illness for me to “infinity and beyond” (A Toy Story line that defines how much we love each other).

 

But, even with all that she does to help me, she falls victim to the stigma when it comes to herself.

 

My daughter was diagnosed at age 6 with Generalized Anxiety Disorder, a diagnosis that she deserved even at age 4. She feared doctors or, honestly, anything medical.  She catastrophized thoughts in her mind constantly thinking that she could catch diseases such as Ebola and Rabies just by breathing it in.  While these medically induced anxieties faded through the years she still tends to get overwhelmed and will have minor Panic Attacks over things that she can’t control.  She is easily frustrated.  She cries. She’s a worrier, and a huge Empath like myself.

 

There have been several occasions where school was a trigger. When she started elementary school, they placed my daughter in the Special Friends program at my request.  It was a program dedicated to giving young children a place to relax for an hour and talk about their feelings.  I loved this program.  She aged out after 2nd Grade .  At this point we started therapy for her to learn coping skills for when anxiety attacks hit.  This helped for a while and she was able to stop therapy for a year or two.  Enter a few major life events, moving and entering Middle School, and her anxieties came back full force.  Insomnia set in.  Panic Attacks over homework became present and therapy sessions returned.

 

Through all of this, I have been her advocate. I do not want to see her suffer the way I have.  There was a brief discussion last year with the school nurse about possibly getting her further help, such as a 509 report, within the school system.  She had been sent home because she threw up.  The nurse knew right away after seeing my daughter through the years that this was related to her GAD, but due to the rules, I had to pick my daughter up and keep her home for 24 hours.  The nurse said that if this was in her file, she could return to school the next day bypassing the required 24 hours.  I thought heavily on this and suggested to my daughter that we get the school more involved.  Her response:

 

“I don’t want special treatment. There are kids that need it more.”

 

I respected that answer since the school year was almost over and we were switching school systems. She started Middle School and things were okay for a short period of time.  Then I noticed her getting heavily overwhelmed, crying and panicking.  I brought the subject of getting more help from the school with her again.  She hesitated and replied:

 

“I don’t want special treatment.”

 

I explained to her that it wasn’t special treatment. Her diagnosis, which is in her medical file at the school, would be more known so that if she did have further issues, she could receive the help she needed, whether it be visits to the school Psychologist or extra time on a test.  Then she started to tear up a bit and said, “No, I don’t want it.  The kids will make fun of me and my friends won’t like me anymore.”

 

Oh boy. Enter the Mental Health stigma.  Because I have been fighting it so long, the huge advocate in me came out and I may have reacted a tad too intimidating for an 11-year-old.  I was angry.  I thought the world has become slightly better with Mental Illness, but I was wrong.  I spoke, with a seething rage inside my head, sternly to my daughter:

 

“Do not feel that way at all. Do not, for one second, be ashamed of your diagnosis.  So, you have an Anxiety Disorder.  You have no idea what other kids at your school may have.  Most likely a few of your friends have one too.  All that, all that you just said, that is the stigma talking.  You do not have to hide like I did.”

 

She began to cry a little. She knew I was right especially after being such a support and advocate for me.  She nodded her head, apologized, and went upstairs.  I didn’t know if it really sunk in, the words I said until one afternoon she came home from school and was excited to show me a video she was working on in school in one of her classes.  I sat and watched the video and was so enamored and proud of this child.  Here she stood, in the crowded hallways of her school talking about her Anxiety Disorder.  She didn’t care if anyone heard her.  She spoke confidently about coping skills and therapy.  My daughter isn’t hiding anymore.  She’s kicking the stigma to the curb just like her mom.

When You Need To Discuss Sexual Harassment With Your Pre-teen Child

“Mom, I need to tell you something,” my daughter spoke as I started the car after picking her up from the YMCA yesterday, “but I don’t think you are going to like it.”

 

I love sentences that start this way. I had no idea what was going to come out of her mouth next.  Let’s just say I never ran the following as a possible scenario in my head.

 

She proceeded to tell me that a 7th Grade boy on her afternoon bus was going around talking about his two favorite words, thick and moist.  I knew instantly what was coming next as I am my father’s daughter and have always had a dirty mind.  She continued by saying that this boy then proceeded to ask all the girls on the bus if he made them moist.

 

Uh, what?! Did I really just hear that correctly?!

 

My daughter, a wise soul (after all her name means Wise Fairy), was disgusted. Somehow, she knew what he meant at her tender age of eleven.  She scrunched up her face and replied with a huge “No!” when he asked her.  But that response wasn’t enough for this kid.  He then wanted to confirm her answer by asking if he could look to make sure.

 

I was worried what her response would be to this. I have always been straight with her, not sheltering her from the realities of this world.  I was very proud when she said that she told him, “Heck no!”  I am raising her right.

 

I had to digest all this. I knew I would feel disgusted if someone asked me this and I am in my late 30s.  When we got home I was curious to see what her father’s response to this situation would be, hoping that some reaction would be given.  Knowing my husband, I knew I was asking for a bit too much.  He said that this is the age boys get disgusting and that our daughter responded correctly.

 

As the discussion progressed during dinner, more questions arose in me.

 

“Did the bus driver do anything?” My daughter responded with, “No.”

 

Excuse me?!

 

“She didn’t say anything at all?!” My daughter responded, “Nope.  Well, at one point she tried to change the subject, but that didn’t work.”

 

Okay, bus driver, I know this is not really in your job description, but please say something even if just to the school.

 

Did I mention that this bus aside from having the Middle School kids, also has 4th and 5th Graders?

 

I was torn with how to react. So obviously, I posted it on Facebook leaving it to the internet gods to come up with a solid solution.  Waiting for reactions to start pouring in, I pondered this event more and more and became more saddened by it.  Of course, the kids in Middle School are learning about their bodies and how their bodies react hormonally, I can’t prevent that, nor do I want to.  But this, this wording… While he thought he was being cool, it was just feeding the Sexual Harassment frenzy that has snowballed into an avalanche in the United States recently.  It isn’t right, this wording isn’t right.  What this boy did, as many on Facebook agreed, was Sexual Harassment.  These girls aren’t going to know yet to tell him to shut up.  Most are going to shy away from it and pretend it didn’t happen.  Worse yet, is a 4th Grader going to know to tell him no when he wanted to check if they were or weren’t “moist”?

 

I woke up and checked Facebook this morning. I was met with generally the same reaction… this is Sexual Harassment, call the school and the bus company.  While I want to jump at the phone and dial the school’s number, I am undecided what to say.  I feel awkward using the word “moist” (God, what a horrible word) when discussing this with the school authority.  I also have no idea what the child’s name is.  What am I going to say, “Some 7th Grade boy is asking the girls on bus 20 if he makes them moist”?  But, I do not want this to die away.  This is extremely relevant especially at this prepubescent age.  This is the age where girls and boys are learning about what their body can actually do.  They are learning about sex.  They are learning about their body’s reaction to sex.  They are feeling awkward about it.  I mean my daughter still plugs her ears and sings “La, la, la” when I even try to discuss what a menstrual cycle is.  I also know that they are coming upon an age where some of their friends will sadly begin to engage in sex.  All this, all this means, they are coming upon the age of being sexually harassed.

 

It is sad, sad to think that I need to discuss in further detail what Sexual Harassment is to my newly eleven-year-old daughter. It is sad that this boy feels he can talk this way and get away with it, especially with all the recent events (Al Franken, Kevin Spacey, Harvey Weinstein, etc.).  It is sad that now somewhere in my town a parent might have to discuss this with their nine-year-old 4th Grader.  How does one delicately explain it to a mere child?  How do you teach your child this is not right?  There is no required training in this like there is at work.

 

So here I sit, angry, disgusted, saddened and a bit confused wanting to hold on to the little girl that still resides in my daughter, but knowing that in this day and age, she needs to grow up at a younger age than I did.

When You’re More Nervous Than Your Child On The 1st Day Of School

Crowds of kids gathered with their parents at the bus stop snapping photos of their elated children.  Some even took video.  I stood with my daughter giving a hug and kiss on her cheek.  I did this as support, support she didn’t ask for. Why? Because today was the 1st Day of School, the first day in a new school district for her and I was worried.

I was very nervous, bordering on anxious… wondering if she had everything.  I think I was more nervous this year than she was because I can actually remember Junior High (New York’s version of Middle School) and I remember starting Junior High not knowing anyone.  I remembered the fear, the anxiety, the pure terror.  You see, I didn’t go to my zoned Junior High where I would have had friends from my elementary school, I went to a ‘Gifted & Talented’ Junior High for my creative writing abilities.  And although my daughter was starting a new school system as we moved in late spring to give her a better education, unlike myself, she already knew a few people.

I worried about my daughter.  With every new thing she would panic over… What if I can’t open my locker? What if the kids make fun of me? What if I am late to class?… my worry grew.  I only want her to be happy and to succeed.

As the days passed and the 1st Day approached, I repeatedly asked her questions:

“Do you remember how to open your locker?  Tell me.”

“What bus do you take from school to the YMCA in the afternoon?”

And then I started to make blatant statements:

“Don’t forget you will need lunch.”

“You only need a pen or pencil the first day. Why are you bringing so much other stuff?!”

I think I was beginning to drive my daughter batty as she began to roll her eyes at me and sigh.

I just wanted her to be prepared.  Middle School is not Elementary School.  You are given more responsibilities in Middle School.  You have to go to more than one classroom.  You have a set time to get to each class.  You have reports and projects.

And most important… you must figure out who you are sitting with at lunch!

This last item was what was making my daughter more anxious the last few days.  She doesn’t want to hurt anyone.  She was debating between her oldest and dearest friend (they have been friends since they were babies), our neighbor across the way and a friend from her former camp in the city we used to live in that relocated too.  She questioned me repeatedly about this.  I suggested her old camp friend as she would see her bestie on the bus and well, our neighbor lives right across the way from us.

A mass chaos of questions, things to purchase, items on a To-Do list and my brain was foggy (it has been for the last couple of months already).  I couldn’t concentrate to get everything organized, I just couldn’t think.  With that I became irritable.  With the irritability, I grew more anxious and had several anxiety attacks.  It felt like my brain was playing a hyper speed game of Atari’s Pong in my head. But I tried to keep my anxieties from my daughter. We didn’t need her GAD to start.

It was official. I was more nervous than my daughter.

As I stood at the bus stop this morning with her and the gaggle of other kids and parents, I internally told myself this is it.  She is ready and if she forgot something, there is always tomorrow.  Tell your Anxiety that she is fine.  She will make friends. She will open her locker.  She will find her classes. You know she is ready for this and so are you.

Then the bus showed up. I waved to my friend, the bus driver.  I watched her get on and smiled. I walked away feeling calm and content and whispered, “Good luck my love.”

Hi, My Name Is Not “Sophia’s Mom”

I was not given the name “Sophia’s Mom” at birth.  How would my parents know all those years ago that I would go on to have a beautiful daughter and name her Sophia.  I am sure they had hopes and dreams for grandchildren, but exact details as the sex and name of the child could not be foreseen in the stars.  After the birth of my daughter though, my name has gone from “Stephanie” to “Sophia’s Mom”.  When introducing myself to her friends’ parents, I always say, “Hi, I am Stephanie, Sophia’s Mother.”

And yet, almost 99% of the time when introduced at school events, or to other friends, I am always referred to as “Sophia’s Mom”.  

But I am so much more.

Being Sophia’s mother is just one piece of me and it is a major important piece of me.  Having a child changes your life.  You are no longer responsible for yourself, you are now responsible for another human being.  I would be foolish to say that being her mother was not significant.  She is one of the reasons my heart beats.  She is one of my strengths.  She is this beautiful human being.  And I love being her mother.

But I am so much more.

I didn’t grow up thinking my career would be ‘Mother’.  I played house and had baby dolls and that was a dream of mine.  But, I was taught to have more aspirations.  My mother stayed at home until I, her youngest, was six.  Then she returned to work.  Her having a career taught me that I could have one of my own.  I did not have to rely on my future spouse for income.  I could earn my own money.

When I decided Architecture would be my schtick at six years of age, I dove into the career head on, even as a young child.  I would build any Lego set I could get my hands on.  The sets progressed in size and complexity as I aged.  In high school, I took drafting classes and started to design houses.  Instead of Teen Vogue, I would buy house plan magazines.  In college, I majored in Architecture and graduated with a Bachelor of Science in Architecture.  Since graduation 15 years ago (wow, I’m old), I have worked in my field for several architects and now for a prominent furniture retailer & interior design studio.  I am not just “Sophia’s Mom”, I am also a “Project Manager/Architectural Services”.

Not every title is positive though.  Since teenager-hood, I have been a diagnosed Depressive.  Through the years, I gained the title of Generalized Anxiety Disorder and PTSD.  At my daughter’s birth, I had the titles of Postpartum Depression and Postpartum Anxiety.  I am Mentally Ill.  While most see these as negative, I have turned this into a positive.  I served as a Warrior Mom Ambassador and Climb Leader for the former Postpartum Progress.  I am an Ambassador for PatientsLikeMe.com.  I stand up to the stigma of Mental Illness and contribute not only to my blog, but online to The Mighty and Stigma Fighters.  I have contributed to three different books concerning Mental Illness, Stigma Fighters Anthologies II & III and A Dark Secret: Real Women Share Their Trials And Triumphs Of Their Battle With Maternal Mental Health Illness.  I am not only “Sophia’s Mom”, I am also a “Mental Health Advocate & Mental Health Author”.

While being a mother, I knew once Sophia started school, that I wanted to be known in that school for a reason most parents would not imagine.  I wanted the teachers and staff to know who I was in case my child was a trouble maker, which thankfully she never turned out to be.  I also wanted to be aware of what was going on in the school so I joined PTO.  First I was just your typical PTO member, then I became Treasurer.  For the last three years, I served in this position and will relinquish it once the school year ends and my daughter graduated elementary school in three weeks.  I have grown close to the staff and will miss them as they have always been nice and considerate to my daughter and myself.  I was not only “Sophia’s Mom”, I was “PTO Treasurer”.

What I am saying is we as moms are so much more than mothers.  You have likes and dislikes, hobbies and other things you are interested in.  Aside from all that I mentioned above, I am a daughter, sister and loyal friend.  I love to garden, to hike, to exercise.  I like hanging out with my friends painting or enjoying a nice meal.  We need to remember that being a mother is a part of us, a huge part, but not the only piece.  The next time I am introduced as “Sophia’s Mom”, do not be shocked if I correct you and say:

“Yes, I am Sophia’s Mom, but I am Stephanie Paige.”